Help Sadie Get the Care She Deserves

My name is Melinda and I am starting this page in hopes of raising money for my daughter Sadie.

Sadie was born on 6/15/2022 and was admitted to the NICU for respiratory failure. Her visit was short and she was sent home. Over the course of the next 18 months, she had countless respiratory

illnesses that required inhalers and Nebulizer treatments. In December of 2023, everything changed and Sadie landed in the PICU with rhino virus and RSV. She required bipap and high flow respiratory support for the next 7 days. She came back home and was my normal baby until she wasn’t and once again was admitted to the hospital for respiratory failure.

Sadie has had 7 rounds of pneumonia since December. She has had a CT scan which gave us the diagnosis of cylindrical bronchiectasis. Bronchiectasis is chronic changes to the lungs that affect the way Sadie breathes and how her body clears mucus. Her CT scan also revealed signs of aspiration. After the CT scan, we had a swallow study which shows that Sadie has constant deep penetration when swallowing fluids and silent aspirations.

Sadie has a ton of appointments coming up for pulmonology, physical therapy, G.I., Speech, and ENT. She also has genetic testing. Insurance has been nothing but a headache; they have denied all of these appointments and we have appealed them. While at some point they get approved, not all of them do. Her ENT doctor would like Sadie to be treated at Boston Children’s Hospital. He said that this is their specialty, that they deal with children like Sadie every day and he feels that they will provide her with the best care and get to the bottom of what is going on with my baby girl. He is going to see what he can do to get us there and to see what he can get insurance to cover.

I’ve created this page to help us get to Boston when the time comes to go. To help cover the cost of travel and shelter while we are there and going there. I work but I make minimum wage and things have been beyond tight. I know this is a lot to ask for and I never wanted to have to do this but I also need to do whatever it takes to get my baby the care she needs. I would appreciate any donations you can make; no donation is too small. Any leftover funds will be donated to another family who may be in Sadie’s situation.

Thank you so much for taking the time to read this!