Help Emilia access life saving DIPG treatment

Our beautiful 10-year-old daughter, Emilia, has recently been diagnosed with an aggressive and heartbreaking brain tumour called a DIPG (Diffuse Intrinsic Pontine Glioma). It is a grade 4 brain stem tumour that cruelly takes away so much, far too soon.

This news came as a complete shock only a few days before she was due to start her final year in Primary School. The odd headache, morning sickness and difficulty dancing like she is used to, has resulted in our world being completely crushed.

Right now, there are no standard cures for DIPG. But there are promising clinical trials in the UK and abroad that are giving children like Emilia more time, better quality of life, and most importantly — hope.

Unfortunately, many of these treatments are not fully funded by the NHS, and to access them we need to raise money urgently for medical costs, travel, and accommodation. The costs can reach hundreds of thousands of pounds, which is impossible for us as a family to cover alone.

That’s why we are reaching out, with hearts full of love and hope, to ask for your help.

Every single donation, no matter the size, brings us closer to giving Emilia the chance she deserves, more time to laugh, play, and make memories with her family and friends.

If you can’t donate, please consider sharing this page. Together, we can give Emilia the best possible chance at life and show her how loved she is by the world around her.

Emilia is no stranger to a fight, being born 3 months early at 1lb 11oz, she entered the world on her own terms, treating prematurity like it was no big deal. Even with the things she’s endured in the last week, she has been so strong and brave.

From the bottom of our hearts — thank you for standing with us. She has an army of love, support and prayers around her and we couldn’t be more grateful.

She is the sunshine in many peoples lives and we need to do everything in our power to give her the best fighting chance.

Kayleigh Anna and Daryl