Help Claire survive this health crisis
Donation protected
Hey guys. I’m reaching out again, because I’m scared.
TL/DR I’m fundraising $2800 b/c expenses are awful and I’m barely alive (if you ask my blood pressure).
May 28, 2023 I was diagnosed with anemia
June 2, 2023 I was diagnosed with autoimmune hemolytic anemia, despite treatment getting it to “manageable levels” the hemolysis is STILL ongoing and we don’t yet know the cause. Lupus made it so bad I needed a blood transfusion but it looks like it was piggybacking on what ever the unknown baseline issue is.
July I was diagnosed with steroid induced adrenal fatigue. My cortisol levels were zero. My pituitary was also all messed up and I had hypothermia in Oklahoma in July.
10/26/23 I had an ischemic attack from a clot in my heart probably caused by viral pericarditis that was also happening at the time. I’ve been recovering from that while struggling with serious GI issues from the as of yet unspecified virus that’s ravaging my body.
My BP while resting has been running between systolic 81-91/36-45 diastolic. So my docs increased my hydrocortisone. B/c that’s a crazy dangerous low number.
Now with 30 mg hydrocortisone in my system this series happened:
1:36 pm I’m finally awake. I couldn’t wake up for more than about 5 min since 9:15 pm last night. Took my BP as soon as I opened my eyes it was 96/51 HR 100. So to get into “safe” numbers my HR had to go crazy.
Ok so this sucks. I stood up and went to the bathroom. That's all I did and my BP by the time I sat back down was
1:53 pm 161/104 HR 110.
Rested sitting
1:58 pm 135/94 HR 94
Laid down with head elevated for another 4 min
2:02 pm 110/78 HR 84
I've got a killer headache too
2:28 pm I seem to have stabilized around 110-116/75-80 HR 84-88 As long as I don't sit all the way up or walk or lay all the way down.
I’ve been trying to not take off from tutoring b/c I’ve got real bills to pay, even with section 8 paying 1/2 of my rent, life costs so much money.
But I don’t know how I’m going to get through working this week if i can’t even sit up without my BP going insane.
Last night my 15 yr old was trying to beg me not to work and I was insisting that we needed the money, so he took his 6’3” 15 yr old body and laid in the middle of the hallway using my laptop bag as a pillow and went to sleep. It was both sweet and heartbreaking. And a sign that I may be pushing myself too hard again.
I need to pay $750 to pay the taxes and registration for my car that are a year overdue and I keep getting pulled over b/c I have a super old dealer plate on the car. I need another new battery on my portable O2 compressor that’s $289 for a used one because a charger I bought got overheated and fried the battery. I got an email from the electric company saying my current bill is $605.95 and I called and I’m grateful to say it’s only $312.95 the rest is what I’m on a payment plan for. Plus ya know regular expenses and I truly love job to job, day to day, there’s no nest egg/landing pad,
So I’m going to swallow my pride. So, $2800 to cover the car/battery/electric and 4 weeks of not working (for regular bills) so that I can actually take time off and stop trying to work more and more to cover the extra stuff that is piling up? I’m genuinely scared I’m going to stress my body out to the point that my heart stops pumping in my sleep. That 85/36 BP was a scary number.
TL/DR I’m fundraising $2800 b/c expenses are awful and I’m barely alive (if you ask my blood pressure).
May 28, 2023 I was diagnosed with anemia
June 2, 2023 I was diagnosed with autoimmune hemolytic anemia, despite treatment getting it to “manageable levels” the hemolysis is STILL ongoing and we don’t yet know the cause. Lupus made it so bad I needed a blood transfusion but it looks like it was piggybacking on what ever the unknown baseline issue is.
July I was diagnosed with steroid induced adrenal fatigue. My cortisol levels were zero. My pituitary was also all messed up and I had hypothermia in Oklahoma in July.
10/26/23 I had an ischemic attack from a clot in my heart probably caused by viral pericarditis that was also happening at the time. I’ve been recovering from that while struggling with serious GI issues from the as of yet unspecified virus that’s ravaging my body.
My BP while resting has been running between systolic 81-91/36-45 diastolic. So my docs increased my hydrocortisone. B/c that’s a crazy dangerous low number.
Now with 30 mg hydrocortisone in my system this series happened:
1:36 pm I’m finally awake. I couldn’t wake up for more than about 5 min since 9:15 pm last night. Took my BP as soon as I opened my eyes it was 96/51 HR 100. So to get into “safe” numbers my HR had to go crazy.
Ok so this sucks. I stood up and went to the bathroom. That's all I did and my BP by the time I sat back down was
1:53 pm 161/104 HR 110.
Rested sitting
1:58 pm 135/94 HR 94
Laid down with head elevated for another 4 min
2:02 pm 110/78 HR 84
I've got a killer headache too
2:28 pm I seem to have stabilized around 110-116/75-80 HR 84-88 As long as I don't sit all the way up or walk or lay all the way down.
I’ve been trying to not take off from tutoring b/c I’ve got real bills to pay, even with section 8 paying 1/2 of my rent, life costs so much money.
But I don’t know how I’m going to get through working this week if i can’t even sit up without my BP going insane.
Last night my 15 yr old was trying to beg me not to work and I was insisting that we needed the money, so he took his 6’3” 15 yr old body and laid in the middle of the hallway using my laptop bag as a pillow and went to sleep. It was both sweet and heartbreaking. And a sign that I may be pushing myself too hard again.
I need to pay $750 to pay the taxes and registration for my car that are a year overdue and I keep getting pulled over b/c I have a super old dealer plate on the car. I need another new battery on my portable O2 compressor that’s $289 for a used one because a charger I bought got overheated and fried the battery. I got an email from the electric company saying my current bill is $605.95 and I called and I’m grateful to say it’s only $312.95 the rest is what I’m on a payment plan for. Plus ya know regular expenses and I truly love job to job, day to day, there’s no nest egg/landing pad,
So I’m going to swallow my pride. So, $2800 to cover the car/battery/electric and 4 weeks of not working (for regular bills) so that I can actually take time off and stop trying to work more and more to cover the extra stuff that is piling up? I’m genuinely scared I’m going to stress my body out to the point that my heart stops pumping in my sleep. That 85/36 BP was a scary number.
Organizer
Claire Marlatt
Organizer
Norman, OK