Fixing Sian
Donation protected
As most of you would know I have been sick for a while now; 11 years this November. Although what I have isn’t terminal or physically disabling, it has had an extreme impact on my life’s journey. It has molded me into the person that I am today, and has made all of my decisions for me, meaning that I have no control over where my life takes me.
I have been indefinitely suspended from school, I have lost 6 jobs from my health, I have been bullied and pressured by uni in regards to my chosen career, I have missed out on almost every fun and exciting thing that I have ever wanted to do, I am unable to get travel insurance, I constantly cancel things and disappoint friends and family and I am in hospital at least every couple of months.
I have conditions which aren’t really much when thought about on their own but together they mean that I spend lots of time sick in bed, in hospital and at doctor and specialist appointments. Anaphylactoid reactions to a large number of allergens including cleaning products, medications, insects, foods and sometimes unknown substances has resulted in 4 hospital admissions this year alone, 3 of which were in Intensive Care. I also have brittle asthma and ulcerative colitis, and lots of negative side effects from my steroids (which ‘fix’ my conditions) like weak bones, hypertension, immunosuppression and adrenal insufficiency.
I have tried everything over the years in the hope that I can find some way to have more control over life, nothing has really helped, the doctors just prescribe more drugs and more tests and procedures.
Until now that is. There is a new hope. Probably the only thing that I have ever felt so hopeful about; it is a drug names Xolair and it is designed to block mast cells from reacting, which are the cells responsible for the allergy and asthmatic reactions. People who have trialed this drug previously have had success in as little as 4 months, and have been able to reduce and some even completely cease their medications. They have gone on to have very minimal reaction to allergens and have improved their quality of life threefold.
The only downside is that as I don’t qualify for the subsidy, this drug will cost $385 per month. I know that this is incomparable in cost to many other life saving treatments and I can’t even believe that I am asking for help, but I can’t afford Xolair on top of my other medications and treatments, and the reduced hours that I have been working.
I really do need to please ask for your help, any donations at all would be so greatly appreciated to go towards what I can afford to purchase this drug. I wouldn’t normally be so invested in something that I am uncertain about, but I am at that point in my life where I am very much tired of being sick and tired, and I want to have the opportunity to see where I can get in my journey without the confines of illness.
I don’t know the healthy Sian anymore and I’d really love to meet her.
I appreciate anything that you can offer, and I fully understand if you can’t offer anything at all, your prayers that this will work will be plentiful enough xxxxx
I have been indefinitely suspended from school, I have lost 6 jobs from my health, I have been bullied and pressured by uni in regards to my chosen career, I have missed out on almost every fun and exciting thing that I have ever wanted to do, I am unable to get travel insurance, I constantly cancel things and disappoint friends and family and I am in hospital at least every couple of months.
I have conditions which aren’t really much when thought about on their own but together they mean that I spend lots of time sick in bed, in hospital and at doctor and specialist appointments. Anaphylactoid reactions to a large number of allergens including cleaning products, medications, insects, foods and sometimes unknown substances has resulted in 4 hospital admissions this year alone, 3 of which were in Intensive Care. I also have brittle asthma and ulcerative colitis, and lots of negative side effects from my steroids (which ‘fix’ my conditions) like weak bones, hypertension, immunosuppression and adrenal insufficiency.
I have tried everything over the years in the hope that I can find some way to have more control over life, nothing has really helped, the doctors just prescribe more drugs and more tests and procedures.
Until now that is. There is a new hope. Probably the only thing that I have ever felt so hopeful about; it is a drug names Xolair and it is designed to block mast cells from reacting, which are the cells responsible for the allergy and asthmatic reactions. People who have trialed this drug previously have had success in as little as 4 months, and have been able to reduce and some even completely cease their medications. They have gone on to have very minimal reaction to allergens and have improved their quality of life threefold.
The only downside is that as I don’t qualify for the subsidy, this drug will cost $385 per month. I know that this is incomparable in cost to many other life saving treatments and I can’t even believe that I am asking for help, but I can’t afford Xolair on top of my other medications and treatments, and the reduced hours that I have been working.
I really do need to please ask for your help, any donations at all would be so greatly appreciated to go towards what I can afford to purchase this drug. I wouldn’t normally be so invested in something that I am uncertain about, but I am at that point in my life where I am very much tired of being sick and tired, and I want to have the opportunity to see where I can get in my journey without the confines of illness.
I don’t know the healthy Sian anymore and I’d really love to meet her.
I appreciate anything that you can offer, and I fully understand if you can’t offer anything at all, your prayers that this will work will be plentiful enough xxxxx
Organizer
Sian Mullins
Organizer
Daisy Hill, QLD