Hi yall!

Our son was born with a very rare chromosomal abnormality called ring 21 chromosome, bilateral cleft lip and palate, Ventriculomegaly of brain, right aberrant subclavian artery, a laryngeal cleft, feeding difficulties, silent aspiration, klippel feil syndrome, obstructive sleep apnea, & blue spells.

He developed severe oral aversion from multiple surgeries to fix his cleft. We have been in multiple therapies weekly for feeding, physical, & occupational therapy driving all over SWFL Florida for all his other specialists for the past 2 years. Our son is on a feeding tube 24:7 and our insurance unfortunately only allows 2 hrs weekly for feeding therapy. He is needing way more than 2 hrs a week. We did ALOT of research and looked into intensive programs here in Florida that specialize in feeding. We have worked really hard to get him into an intensive therapy program in orlando at Arnold Palmer children’s hospital. It’s a 3 month program but unfortunately we don’t have a guaranteed place to stay for the 3 months so we would have to commute daily, 5 days a week. This was the closest place to us that offers this kind of therapy.

Gas in my vehicle is going to be around $350 a week… yes you read that correctly a week. He needs this therapy so he can start eating by mouth.

I was hesitant to create a go fund me page. I know all of us are struggling and it took a lot to get the courage to write this and ask for help but this is so real. Having a special needs child is ALOT as some of you may know first hand. If you able to help, I just want to say how much of a blessing you are to our family and we couldn't make this happen without y'all.

Thank you so much for reading a little bit about our story.

~The Willis Family