
Help Mickey Survive His Many IBD Medical Expenses
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A little background info:
I randomly got symptoms and was diagnosed at 26. After nine surgeries, two of which involved me being medically disemboweled. I had hoped that would've done more for me than rediagnosing my Ulcerative Colitis to Indeterminate Colitis. I feel like I should play the lotto because that only happens to 10-15% of UC patients, how lucky am
Over the past two years, I've had four surgeries for my autoimmune disease. This past December, I needed surgery to get a permanent ostomy. During a checkup and my annual ileostomy scope.
Last month, they found more inflammation, and now I need more tests, another CT Scan next week, and a few more follow-up appointments with my doctor in Nashville.
I knew about the hefty bill from my scope in July, but I wasn't planning to accrue over $1000 in unexpected medical bills. all these "fun" unplanned appointments and health issues mean I'm forced to take unpaid time off from work. I used up all my sick and vacation days for the year over the last five months due to my shitty disease.
Hopefully, my doctors don't find any more fun surprises lurking in my bowels.
According to the American Healthcare system, I need to pay for treatments that cost more money than I've made throughout my life for getting a disease that causes chronic pain and illness through no fault of my own.
I usually work over 60 hours a week and barely keep my head above financial water while dealing with my standard IBD-related medical bills.
See, the system "works"!
...
Oh... By "works" I mean it works for you as long as you don't need regular trips to a doctor who is a specialist for your specific and incurable disease, requiring frequent and expensive procedures and taking a multitude of scans & tests along the way.
...
Or if you're rich.
With no family history of IBD... I'm like a first-generation mutant with a shitty power, a fantastic ability that causes my immune system to attack my digestive system violently and constantly. I mean, I could've had a healing factor, mind powers, or some teleportation gimmick but an immune system that goes all First Blood to my body is neat too...
#Blessed!
Also, I think it's nuts that the insurance I pay monthly, specifically for medical expenses, tries to control what care I receive by reflexively denying care and making it difficult to appeal that denial. It's funny that everything I've had deemed becomes necessary after a trip to the ER due to not being resolved sooner.
So glad someone who has never examed me personally and is in a different field of study than my Gastroenterologist feels qualified to deem every procedure, test or medication I've been on as "Not medically necessary".
Organizer

Mickey Paradis
Organizer
Cookeville, TN