Theresa’s Brain Tumor is Back
The brain tumor is back...and my vision is going...and they're not even related. The pain in my head is becoming excruciating again.
No surgery this time. They want to do focused radiation. 5 days a week for 6 weeks. Ugh. But at least it's not surgery. THAT was traumatic. But, there's an 80-90% chance the tumor will not grow back after the radiation, and I like those odds. There's a big co-pay with every visit, so 30 co-pays.
A month-and-a-half ago, I woke up to some vision loss in my right eye. I've seen an ophthalmologist who has run some tests, determined it wasn't in my eyes, it's in my brain, it's not related to my brain tumor, and by the way, there's loss of peripheral vision in both eyes, too. Now I need to see a specialist-specialist - a neuro-ophthalmologist, who specializes in where the eyes communicate with the brain. Many expensive tests in my future.
This is especially frustrating and upsetting because I'm WordPress web designer, a graphic designer, and a fine artist, and I've just started painting again since my brain surgery, and now I'm losing my vision. I need to see. I hope we can stop it.
Then I found out that there is an excellent likelihood that I lose my health insurance as of January 1, 2019. I'm working on that, too.
The money raised will help me get all this taken care of. We're not sure what the symptoms will be when all this is done. I'm still working, doing graphic design and WordPress web design, I'm still painting until I can't see any more. The picture below is a watercolor I recently did of my grandson. I had so many plans for my art. Things are now up in the air.
I can't begin to pay for all of this. I'm only 2 1/2 years out from my brain surgery in 2016, and frankly, still recovering. I've been working hard, thank goodness, but it's been exhausting.
Won't you please consider donating so I can get the health care I need? I will be so grateful for anything I can raise. It gives me more time. Otherwise, things don't look good for me. Any amount you can donate - as soon as possible - will be deeply appreciated. My grandkids will thank you. My kids will thank you. My mom and my sisters will thank you. I thank you.
I'm hanging in there, though, and hoping once the radiation is done, the vertigo will go away. I'm having good days and bad days. Some very bad days. ER visit via ambulance a couple of weeks ago for it. Got meds. But, I'm hanging in there. Look, I'm upright right now, typing, and not falling over.
When the radiation is done, I can choose to keep my mask or have the Cancer Center get rid of it. I think I'm going to keep it, put an angry face on it with a black Sharpie, and hang it on my wall to remind me to never do anything to my brain - brain surgery or radiation - again, even if my brain is broken again. Because this has sucked. But, I fought, and will continue to.
Not asking for money. Thank you so much for your support this year, and making this possible. I am deeply grateful for your generosity.
In case I didn't mention it, I finally got my health insurance situation resolved for 2019. That makes for a Happy New Year.
Happy holidays (all of them) to every one of you, and God bless you. Thank you for caring.
Thank you for making this treatment possible. I'm not out of the woods yet, but I'm actually feeling a little better. Hair is increasingly falling out, and I've had some some 3am wakeup headaches - both to be expected), but overall, I can't complain.
So, I'm not going to ask for any more donations, or ask for any more shares of my story. I don't want to be one more hand out. I'm blessed beyond measure by your generosity during my campaign, and my Christmas wish is that you would be equally blessed. You have been in my prayers.
I'm leaving this GoFundMe campaign up, if you'd like to give later. I complete my treatment on December 31.
Thank you so much for your help. God bless you.
But, thank the Lord, my big graphic design project was finished Saturday, and the client is super happy. Doctor bills are coming in, and thanks to your donations, I'm able to pay them. I'm still trying to work, but your donations are allowing me to get some rest during this journey.
I'm still around $2500 shy of my goal, so please continue to share my story, but I'm so incredibly grateful for the donations I've received. I can't even imagine how I'd be able to do this without your help. Thank you so much!!
It's at the Cancer Center, even though I don't have cancer. I have a brain tumor (not all tumors are cancer) butting up against the right trigeminal nerve, the nerve that sends a lot of sensation to the right side of your face and also helps you chew. The part of the nerve providing sensation to my eye, my ear, and my upper molars is being affected. It's like an ice pick is going into my eye and the top of my head. Like a bad earache. Like a tooth infection. Not fun.
They asked if I wanted my mask when I'm done with all my treatments. Mmmm, no.