Harry and Hud's Medical and Camp Expenses

As many of you remember, last year Harry was diagnosed with Pyroluria, also known as Pyrrole Disorder.  Since that time Harry has successfully been taken off ALL his medications and is now taking vitamin and mineral supplements, prescribed by Dr. Mensah from Mensah Medical out of Chicago. BUT in March, we had a major setback, he had a seizure.  It was his first in 4 years.  We are going to have a consult with Dr. Mensah, with very specialized lab work, and of course it is not covered by insurance. 

Hudson has 2 camps for limb different kids/athletes.  Harry is going to be attending Camp Barnabas for the 3rd year in a row and Hud will be attending as a sibling.  We know these camps are extra things, but they are very important to the boys success and are hard to pay for when unexpected expenses happen. 

The third and most important part of this fundraiser is to raise money for Harry to receive Hyperbaric Oxygen therapy.  There are many successful examples of abnormal brain activity, seizure disorders and development delays being completely cured through HBOT.  The closest therapy center  is in Kansas City and a set of sessions lasts 4 weeks and is $5000.  Click "therapy center" for more info.  Our friends and family have been so generous and are always asking us how they can help.  The bottom line is, insurance does not cover the help that Harrison needs, never has and probably never will.  

Our previous fundraisers, including a Go Fund Me, helped us tremendously and WE CANNOT THANK YOU ENOUGH.  Trust that we are trying  hard to do this on our own, but it is very hard given the issues we are dealing with.  We love you all very much and have been overwhelmed by the love and support we have received in the past.  

Sincerely,
     Greg and Liz Kemper