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With hope...The odds don't matter

$50,073 of $100,000 goal

Raised by 545 people in 10 months
Life turned upside down for us on March 2, 2018, when our 1.5 year old niece, Victoria Hope Barcz, was diagnosed with an aggressive form of cancer. The lesion first formed on her right temple and has since burrowed its way past her skull and into the periphery of the brain. A month into this journey, the group of physicians treating Victoria, a collaboration of specialists from Sick Kids, Princess Margaret and Mount Sinai, had yet to come to a definitive diagnosis. It has now been six weeks since Victoria was admitted and a diagnosis has been reached...Myoepithelial Carcinoma. Agnes has been left to tend to Victoria and her seven year old sister, Isabella, practically alone. Victoria has already undergone two rounds of chemotherapy which has significantly reduced the size of the tumor. There's hope. According to doctors, Victoria is to endure between one to three years of intensive chemotherapy, radiation and surgeries, all followed by years of follow ups. Following careful consideration, the team believes Victoria's best hope for survival comes with relocation for all further treatment to Jacksonville, Florida, at an approximate cost of $250,000 US dollars. We are currently awaiting approval for federal funding to assist with the medical expenses. Agnes would never ask for assistance but she is always the first to offer a helping hand. A truly kind, loving and generous soul. For this reason, we have decided to create this ‘Go Fund Me’ campaign on her behalf. Please find it in your heart to support this beautiful family in any way you can. All cheques can be made out to Victoria Hope Barcz and sent to: 4242 Elora Dr Mississauga, ON, Canada L5B 2Y8 Words of encouragement are just as appreciated. Love, her aunts and uncles. 
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Hello everyone,

I haven't updated this page for a while as Victoria has spent most of her time in he hospital. She's been sick quite often.

I wanted to thank you again for your incredible generosity and support. Victoria has completed 13 rounds of chemo. Initially 14 rounds were recommended, however, since she's been so ill, the risks of having additional rounds outweigh the benefits. Kiki is done with chemo!!!

Unfortunately, that is not the end of her journey in battling the disease. In the next couple of weeks, Victoria will undergo an MRI to check as to the status of her tumor. She will also have follow ups with the dentistry and ophthalmology departments at Sick Kids. Unfortunately her right eye is weaker than her left and I'm not certain what this may mean for the near future and beyond. Please continue keeping her in your thoughts and prayers.

We thank you from the bottom of our hearts!!!
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Hello!

We just wanted to say thank you for all the wonderful visits and telephone calls this past week and a half. It’s amazing to be back in Canada!!! We spent the last week and a half having a “normal” life- unpacking, having visitors, going to the park and Costco .

Victoria has been at Sick Kids since Wednesday, undergoing her 8th round of chemo. This round is much easier as it’s not combined with radiation, although she’s having issues tolerating some of the meds as her little body is so used to them. This in turn affects her personality, mood swings, and quality of sleep.

Victoria has started walking! She’s waddling around the hospital in her confident and sassy way. She also started talking in phrases. These are huge milestone for both of us as Victoria stopped walking and standing on her own around June 10th as she was too weak from radiation and chemo. She was also only using singular words. Victoria will be receiving physio and occupational therapy sessions at home when she is discharged from the hospital. I was worried about her vision as the tumour was also on her optic nerve, but Victoria’s doctors assured me that she can see and that her eye is just swollen from the radiation. Kiki’s going to be undergoing a hearing test (no date yet), a dental /oral exam (possibly on Monday), and an echocardiogram (on Monday).

Our goal is for her to start eating and drinking as she’s entirely dependent on her Gtube. She does ask for a few licks of ice cream and butter (!!!) occasionally, which means that I’m constantly following her with containers of ice cream and butter . Kiki’s skin looks amazing! She still has some radiation burns (that look like a sunburn) and some faint discolouration on her head and forehead, but this is nothing compared to what she had before. She loves her radiation cream so I slather it on her face and neck (as seen in the picture below ).

Victoria’s treatment will continue as she has a total of 14 chemo therapy rounds. I was informed by the doctors that surgery (to remove the tumour) is not possible, so I’m hoping and praying that the tumour has been completely eradicated due to the aggressive approach in Victoria’s treatment. I have also been told that there will be no maintenance chemo protocol. Victoria will be going to the hospital every 3 months for scans and tests for the first year and every 4 months for the second year. She will also undergo cognitive development tests and more vision and hearing assessments. We are also looking at a plastic surgery in the future as her tissue and bones that have been radiated will not grow at the same rate as the parts that have not been radiated. I will also be taking Victoria for follow ups to Jacksonville once her chemo is done and she is deemed fit to travel.

We continue to ask for prayers and positive thoughts for Victoria’s recovery. Your compassion and kindness have been so important in letting me know that I’m not alone. I wanted to let you know that I read every single comment, message, and text. Although I sometimes don’t have the time to write back until much later, your words have lifted me up when I needed it the most. Her tumour is so rare that there is no treatment protocol for it. The treatment plan is based on a study that has 7 people in it and is largely dependent on Victorian’s reaction to her meds. Her team consists of so many wonderful people, both here and in Florida, who have also been my shoulder to cry on and who have provided me with ample opportunities to vent. Her doctors are amazing and have reached out to other research hospitals for their opinion, including St. Jude’s, to get the best help for my little girl.
I am so, so thankful that there are so many supportive people in our lives. Again, we thank you from the bottom of our hearts.
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Victoria has finished her 18th radiation session today. She has 12-14 more to go, based on how she copes with treatment. Victoria’s having a difficult time. She has radiation burns around her right eye, nose and throat. She can’t eat or drink and has difficulty swallowing. Her entire nutritional intake is done through her G-tube and IV access. Victoria has also finished her sixth round of chemo and is gathering strength to start her seventh round by the end of this week/beginning of next week.

Please continue to keep Victoria in your prayers.

Thank you again for your generosity and continuous support.
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We would like to thank everyone, once again, for their kind words, prayers and generosity.

Victoria is doing well. She spends most of her days walking around the hospital hallways making friends at every turn. Victoria has finished two rounds of chemotherapy and has just started radiation. This latter portion of her treatment has been delayed for a week and a half due to a defective cyclotron in the proton machine.

In the next month and a half Victoria will undergo another chemotherapy round as well as a minimum of 32 radiation sessions.

Thank you again for your support.
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$50,073 of $100,000 goal

Raised by 545 people in 10 months
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