Jesses Lung Transplant Fund
We are so grateful and blessed that Jesse’s medical expenses, including the very expensive lung transplant are covered by his insurance. However, due to his frequent stays in the hospital for treatment, he is unable to work, and as such, doesn't have the funds necessary to purchase a reliable car to travel to Seattle, WA from Spokane, WA let alone cover the temporary living expenses.
His devoted mother, Tina, is a single, hardworking mom, but she just does not have the means to cover these costs.
Your gift will go to cover the following items: (1) Reliable/Sensible used car that can travel from Spokane, WA to Seattle, WA; (2) Travel Expenses (fuel/insurance/maintenance); (3) Temporary housing costs (Short-term Motel, then small apt); and (4) Living expenses while in Seattle (food/utilities/etc). We anticipate all these costs totaling approximately $45,000 for the first year.
Any additional funds raised will be used for Jesse's recovery after surgery and his future "Children with Cystic Fibrosis Music & Art Foundation".
Jesse loves music and art and is a talented musician. He is currently working on an album of his music with the Chaplain at Sacred Heart Medical Center (also a musician and sound engineer) as well as a foundation that will focus on encouraging children with Cystic Fibrosis in their own art and music pursuits.
I know it's been awhile since I updated you on Jesses health and his Lung transplant needs. It's been a pretty hard year with Jesse spending a huge amount of time in the hospital. He had many visits to the UW Medical Center to be evaluated for lung transplant. They decided his diabetes is not controlled enough to have transplant so they recommended he see a new endocrinologist. He started seeing one last summer. Since then his blood sugar levels have improved A lot even though he is on a daily dose of steroids at this time. One more visit with the Endo and he can be seen again at UW Medical Center.
His health is so fragile at this point that it's amazing he's still alive. Jesse has even amazed the doctors by walking out of the hospital more than once over the last year. He even spent some time in a medical rehab hospital in Idaho and they too were surprised he was able to go home. His CF doctor and sacred heart palliative care doc were ready to send him home with hospice when they chose to send him to the rehab hospital instead. There he got some physical rehab that helped just enough to keep him going longer. He is getting ready to celebrate his 26th birthday. He never thought that would happen. He was pretty convinced he wouldn't live to see the last one. He is the strongest person I know!!
His life at this point is just a waiting game. His oxygen needs are huge. He's on 6-10 liters of oxygen continuously depending on how he's feeling that day. In the hospital he's usually on 15 liters when he gets put in. He mostly sleeps but dreams of the day he gets a new set of lungs. His life will be renewed and amazing once that happens!!!
Thank You ALL for the support you have given over the last year and a half. You truly make his day with all the outpouring of love he receives
Thanks again for all your support!!!!!!!!
Happy 24th Birthday Jesse. I hope you have a great day!
Happy 24th Birthday Jesse. I hope you have a great day! #BreatheEasy
I am so happy for you guys i pray you get the money for this
Thank you everyone for supporting and sharing in the awareness of Cystic Fibrosis. It is unfortunate that this genetic disease affects 30,000 children and adults in the United States (70,000 worldwide) end up having CF. An additional 10 million people — about one in every 31 Americans — are symptomless carriers of the defective CF gene. It is important to share this page and bring awareness and in the process it helps my cousin. Thank you everyone for all you have done :D
Thank you everyone!!! This really means a lot to us!!!
Special Mobility Services 5095349760 has contracts with the gas stations and hotel Nexus over there and they do pay for gas and hotel for the patient and one person if you are going for a state covered procedure it's actually part of the law and your medical coverage pays for it...this is designed so people who cannot afford it have access to advanced medical treatment.
Saw your story on the news. Wishing you all the best with your health. I hope you get a healthy set of lungs that give you energy to do what you love! This is your year