Husband's Severe Lyme, Serious Debt
Donation protected
Xath (my husband) has dealt with long-term severe chronic and progressively worsening neurological and neuromuscular Lyme Disease for almost twenty years, as well as severe Fibromyalgia, Chronic Fatigue and damage done by Aspartame Toxicity/poisoning from one of his jobs.
SSDI (Disability Income) was taken from him for no viable reason last year which has put us in an extremely bad financial situation, even struggling with every day bills. He was on Disability for 19 years in the first place due to the Lyme and it's affects.
The goal amount is bare minimum set to just barely cover current recent medical debts accrued.
But if we can reach beyond that goal, it would possibly allow for further and new treatments.
Lyme Disease can cause far more than what most people realize, and only now is modern medicine beginning to recognize that fact (see list of serious symptoms below that he deals with which adversely affect every day functioning).
Since 1999, he's been out of work and he's gone through torture with medical testing and has been through countless various treatments for years that did more harm than good. He's also gone the route of "alternative" (Eastern/Holistic Medicine) with very little to no results with the worsening symptoms he's been dealing with for almost two decades.
Images attached below are proof of his diagnosis, since it's easy for people to claim anything, but he's as real as it gets, so he wanted me to put photographs of just some of his extensive medical records on this profile (anything blacked out is for privacy reasons) if I was going to create this campaign.
He's never been one to complain, never asked for help for anything in life, and extremely private (to say the least) so allowing me to start this campaign was a difficult decision for him.
But both his health and our financial situation have become serious enough that he's agreed to make this public and agreed to allow me to start this campaign. None but the few closest to him have ever known about his situation.
As unusually strong as he is, his symptoms are extensive and debilitating, and both physically and financially, things have reached a breaking point.
He's a life-long known and respected musician, and for years his condition has also increasingly affected his ability to express himself musically which is life to him (though he continues to push to do so), which has caused serious personal struggles, of which he deals with enough from the physical symptoms alone. He deals with his suffering with genuinely incredible strength, but his suffering is, truthfully, out of control.
He's in dire need of hopefully finding some relief through various forms of new treatments and physical therapy. So, if we surpass the goal, that would be incredible. If not, at least meeting the goal will take a huge financial and personal burden off, at least for the moment.
No one should ever have to be in this position and what most people don't know is that he has a huge heart and has himself donated money and extended himself personally (when he couldn't reasonably afford to do either) to others who were in need. He's too often pushed himself to veritably inhuman limits to take care of his family at the expense of himself.
He's built on incredible levels of honor and respect, so just know that if you decide to help, that his respect and appreciation for any help is absolutely beyond words.
Symptoms he deals with on a daily basis:
- Severe atypical neurological symptoms: chronic daily dizziness, vertigo, balance issues, painful motor tics (seizure-like activity), tremors, visual problems, confusion, coordination issues and a host of other symptoms.
- Intense Fibromyalgia with severe and constant body-wide pain, muscle spasms and problems with elasticity (example: my rib cage is so tight that he's short of breath, along with damage to the phrenic nervice). Myofacial Syndrome/pain, severe nerve pain, joint pain and general neuropathy.
- Severe Chronic Fatigue and lethargy.
- CNS central nervous system and ANS autonomic nervous system symptoms, that regular heart rather, blood pressure, body temperature and a slew of other functions of the body are severely effected.
- Atypical neurological and Hemiplegic migraines which essentially mimics strokes, on a daily basis, which include: more dizzines and vertigo, feeling faint, blood pressure and heart rate effects, not being able to feel or completely control the left side of his body, speaking backwards or not being able to speak at all, spatial
issues, bouts of aphasia and other symptoms.
- Left side body weakness, numbness and coordination issues, disconnectedness and more are already a regular thing, and the Hemiplegic and atypical migraines intensify those symptoms, as well as others.
- Immunological symptoms that mimic everything from MS to Lupus. Immune system is continually heightened, over-reacting and never quite normal, which does include it's own body-wide symptoms.
- There's also been a psychological component that stem from nervious system damage, such as clinicl depression and acute stress.
Immense thanks to anyone who decides to help in this situation!
SSDI (Disability Income) was taken from him for no viable reason last year which has put us in an extremely bad financial situation, even struggling with every day bills. He was on Disability for 19 years in the first place due to the Lyme and it's affects.
The goal amount is bare minimum set to just barely cover current recent medical debts accrued.
But if we can reach beyond that goal, it would possibly allow for further and new treatments.
Lyme Disease can cause far more than what most people realize, and only now is modern medicine beginning to recognize that fact (see list of serious symptoms below that he deals with which adversely affect every day functioning).
Since 1999, he's been out of work and he's gone through torture with medical testing and has been through countless various treatments for years that did more harm than good. He's also gone the route of "alternative" (Eastern/Holistic Medicine) with very little to no results with the worsening symptoms he's been dealing with for almost two decades.
Images attached below are proof of his diagnosis, since it's easy for people to claim anything, but he's as real as it gets, so he wanted me to put photographs of just some of his extensive medical records on this profile (anything blacked out is for privacy reasons) if I was going to create this campaign.
He's never been one to complain, never asked for help for anything in life, and extremely private (to say the least) so allowing me to start this campaign was a difficult decision for him.
But both his health and our financial situation have become serious enough that he's agreed to make this public and agreed to allow me to start this campaign. None but the few closest to him have ever known about his situation.
As unusually strong as he is, his symptoms are extensive and debilitating, and both physically and financially, things have reached a breaking point.
He's a life-long known and respected musician, and for years his condition has also increasingly affected his ability to express himself musically which is life to him (though he continues to push to do so), which has caused serious personal struggles, of which he deals with enough from the physical symptoms alone. He deals with his suffering with genuinely incredible strength, but his suffering is, truthfully, out of control.
He's in dire need of hopefully finding some relief through various forms of new treatments and physical therapy. So, if we surpass the goal, that would be incredible. If not, at least meeting the goal will take a huge financial and personal burden off, at least for the moment.
No one should ever have to be in this position and what most people don't know is that he has a huge heart and has himself donated money and extended himself personally (when he couldn't reasonably afford to do either) to others who were in need. He's too often pushed himself to veritably inhuman limits to take care of his family at the expense of himself.
He's built on incredible levels of honor and respect, so just know that if you decide to help, that his respect and appreciation for any help is absolutely beyond words.
Symptoms he deals with on a daily basis:
- Severe atypical neurological symptoms: chronic daily dizziness, vertigo, balance issues, painful motor tics (seizure-like activity), tremors, visual problems, confusion, coordination issues and a host of other symptoms.
- Intense Fibromyalgia with severe and constant body-wide pain, muscle spasms and problems with elasticity (example: my rib cage is so tight that he's short of breath, along with damage to the phrenic nervice). Myofacial Syndrome/pain, severe nerve pain, joint pain and general neuropathy.
- Severe Chronic Fatigue and lethargy.
- CNS central nervous system and ANS autonomic nervous system symptoms, that regular heart rather, blood pressure, body temperature and a slew of other functions of the body are severely effected.
- Atypical neurological and Hemiplegic migraines which essentially mimics strokes, on a daily basis, which include: more dizzines and vertigo, feeling faint, blood pressure and heart rate effects, not being able to feel or completely control the left side of his body, speaking backwards or not being able to speak at all, spatial
issues, bouts of aphasia and other symptoms.
- Left side body weakness, numbness and coordination issues, disconnectedness and more are already a regular thing, and the Hemiplegic and atypical migraines intensify those symptoms, as well as others.
- Immunological symptoms that mimic everything from MS to Lupus. Immune system is continually heightened, over-reacting and never quite normal, which does include it's own body-wide symptoms.
- There's also been a psychological component that stem from nervious system damage, such as clinicl depression and acute stress.
Immense thanks to anyone who decides to help in this situation!
Organizer and beneficiary
Stephanie Mlandroth
Organizer
Flagstaff, AZ
Xathagorra Mlandroth
Beneficiary