Ultra marathon for the phoebe hoskin trust

This year to raise money for The Phoebe Hoskin Trust myself, Vicki Hoskin and Chris Gaffney are all individually attempting a 24Hr ultra marathon.

Me personally I will be wearing my military back pack and webbing carrying approx 20kg.

The event is on the 15th of August, and consists of a horrible coastal 5 mile route, The aim is to complete as many loops as possible in the 24hrs.

We are allowed no outside help and have a minimal time I’m allowed in the “sanctuary area” where I’ll eat, drink and admin myself, I believe we are allowed 5-10 mins in this area every time a loop is completed.

In the summer of 2020, Jade & Sam welcomed their beautiful daughter Phoebe to the world. Shortly after being born, Phoebe was diagnosed with leukodystrophies, a group of progressive, metabolic, genetic diseases that affect the brain, spinal cord and often the peripheral nerves. After just 9 months baby Phoebe sadly passed away. This turned Jade & Sam's lives upside down. Having spent 9 months in and out of hospital and various different appointments, it would have been too easy for crucial memories to be missed out on. Thankfully, we were able to make some lifelong memories that will allow us to ensure Phoebe's memory lives on forever.

With this in mind, we have set up the Phoebe Hoskin Trust so that we can do our best to ensure that families who find themselves in this same, heart breaking situation have a small helping hand making these important memories. The aim of our memory boxes will be to provide trinkets and information on making important memories and provide much needed information on what to do when your child receives a terminal diagnosis. This is a time when you have so much to think about, and we want to assist in making sure you're able to alleviate some pressure in the toughest of times, as well as raising much needed awareness of leukodystrophies in children.