Love for Jaxon

Meet Jaxon.

Jaxon had his 12th birthday this past October.

12 is a pretty big deal in the Duchennes Muscular Dystrophy world. You see, 12 is usually the age for children with this disease to be in a wheelchair. So far, Jaxon has defied these odds and is still staying active as much as possible. He’s pretty incredible and also incredibly smart. I mean.. this kid probably has the globe memorized or something crazy, I swear.

However, this disease is very serious and has recently been catching up to him. Even though he is still walking and doing things like shooting baskets, he is starting to struggle with daily tasks such as walking up stairs, climbing into the car, etc.

Our family is hoping to raise funds to purchase a van that will meet Jaxon’s needs. We would like to make life just a little easier for someone going through something so devastatingly difficult. We love this boy with all of our heart and all we can do is everything we can to make life just a little less crappy for him. But we need your help..

if you feel so led to donate toward our cause, you can click on the link to donate.

All funds will be secure and held specifically to purchase a van that will cater to Jaxon’s needs.

Below is more information on Duchenne’s Muscular Dystrophy. It is saddening information, I will warn you. But it is necessary information to share exactly why this van would be so beneficial for Jaxon.

We appreciate any and all help toward our goal!

Duchennes Muscular Dystrophy:

Duchenne Muscular Dystrophy is a stinker of a disease. It's the most common fatal genetic disorder to affect children around the world. If you've got it, you can't produce dystrophin, a protein you need to build up your muscles. As a result, every muscle in the body deteriorates. At the moment there is no cure.

The facts about Duchenne are inescapable:

* Duchenne Muscular Dystrophy is 100% fatal

* Most kids with it die in their late teens or early twenties

* Most with it are usually in a wheelchair by the age of 12

* It leads to respiratory failure, heart failure, and other debilitating orthopaedic complications

Requires a medical diagnosis

Symptoms include frequent falls, trouble getting up or running, waddling gait, big calves, and learning disabilities.

People may experience:

Muscular: abnormality walking, difficulty standing, muscle weakness, loss of muscle, or permanent shortening of muscle

Developmental: learning disability or slow growth

Also common: constantly walking on tip toe, difficulty swallowing, enlarged calves, fatigue, frequent falls, or scoliosis