Team Liam: New Liver, New Life

Hello,

My name is Lindsey Patterson, and I am reaching out to share the story of my nephew. Liam Edwards is the son of Ashley and Ian Edwards and the brother of Annisytn Edwards. Liam is a brave child who is in need of a liver transplant.

Liam is a kind, funny, creative, and strong 13-year-old who hopes to one day grow up and be a YouTube Influencer/Veterinarian. He lights up every room with his infectious laughter and boundless energy. Despite facing challenges that no child should ever have to endure, Liam continues to inspire us with his strength and resilience.

Liam has been no stranger to hospitals and medical conditions as he was diagnosed with Polycystic Kidney Disease and OMS (Opsoclonus Myoclonus Syndrome) a rare neurologic disorder as a young child. Liam was diagnosed with Caroli's Syndrome at the age of 2 years old. Caroli's Syndrome is a rare genetic condition that cause the bile ducts in the liver to be wider than usual. These bile ducts are responsible for carrying bile, a digestive fluid produced by the liver, to the gallbladder and small intestine. In Caroli's syndrome, these ducts can form cystic structures and overtime this has led to Cirrhosis (the irreversible scarring of the liver). This condition has progressed to a point where a liver transplant is needed. Liam will be added to the waitlist for liver transplant Monday, April 22nd, 2024.

As you can imagine, the road ahead is daunting. The cost of the transplant procedure, post-operative care, and lifelong medications is staggering. Additionally, Liam will require extensive support and time off school for recovery. His parents Ashley and Ian, who are both nurses, will require time off from work to be by Liam's side for recovery. His sister Annisytn will require full time care while her parents tend to her brother's needs.

But amidst the uncertainty, there's hope. Hope for Liam to experience the simple joys of childhood once again. Hope for him to play with his friends, go to school, and chase his dreams without the burden of illness weighing him down.

Your generous donations will go directly towards covering the medical expenses and lifelong medications associated with Liam's liver transplant. Every contribution, big or small, brings us one step closer to giving him the chance to grow up, thrive, and live a full life.

We will be providing updates on Liam's journey with liver transplant. Please feel free to share his story with others. You can also donate directly to Liam's Venmo at @TeamLiam27. We are always greatly appreciative of support outside of monetary donations such as thoughts and prayers. Together, we can make a difference and show Liam that he is not alone in this fight.

Thank you for your kindness, compassion, and support during this challenging time. With your help, we believe that Liam will overcome this obstacle and continue to brighten the world with his smile. Thank you for reading and sharing our story!

With love and gratitude,

Lindsey Patterson on behalf of Ashley and Ian Edwards

Venmo QR code: