Support Jason's Battle Against Rare Blood Diseases

UPDATE : THEY ARE ALSO VERY CONCERNED BECAUSE I HAVE A MINI STROKE. Also have officially started Chemotherapy as of today !!

UPDATE : April 10th I am officially being transferred back to Barnes just waiting on a a open room and let’s hope that this time is a better experience because that is where I need to be in order to save my life at this time by me staying here at Carl is simply putting a Band-Aid on it every day and getting nowhere,

UPDATE : April 8th 2025

I have officially been diagnosed with HLH is a rare, life-threatening disorder characterized by an overactive immune system that leads to the destruction of blood cells. The symptoms of HLH can vary depending on the severity of the disease, but may include:

Fever: High, persistent fever that may not respond to antibiotics

Enlarged lymph nodes: Swollen lymph nodes, especially in the neck, armpits, and groin

Enlarged liver and spleen: Hepatomegaly and splenomegaly

Anemia: Low red blood cell count

Thrombocytopenia: Low platelet count

Leukopenia: Low white blood cell count

Rash: Skin rash, which may be red, purple, or itchy

Neurological symptoms: Seizures, confusion, irritability, headaches

Gastrointestinal symptoms: Abdominal pain, vomiting, diarrhea

Other symptoms: Weight loss, fatigue, night sweats

HLH can also cause a rare type of skin rash called "purpura fulminans," which appears as large, painful blisters on the skin.

It's important to note that some of these symptoms may also be present in other conditions. If you experience any of these symptoms, it's essential to seek medical attention promptly.

I’d like to introduce myself my name is Jason and I’ve been fighting a blood disease for 26 years now that has finally came full circle. Starting March 1, I woke up out of nowhere and have to have dialysis. ..

I have blood diseases blood infections. I have some very rare infections and diseases that the facilities around here are actually having trouble to keep up with keeping me healthy and everything. I have to stay hooked up to a dialysis machine 24 seven at this point and it’s basically life support. The doctors tell me that I’m pretty much on hospice and that they’re just trying to keep me comfortable until they can try to figure out what exactly is going on. Obviously from the pictures I am completely bedbound. I work with physical therapy. It is extremely difficult extremely painful to do anything or to get out of bed. I have had my share of medical for more than 10 people’s lifetimes. I had a spinal cord injury in 2015 that left me completely paralyzed and on disability which really doesn’t pay a whole lot of my bills. My medical bills and everything else household bills are starting to add up and I’m getting extremely worried about everything able to take care of the things I need to take care of. This was a completely unexpected surprise not that I would put this on my worst enemies at all. I have worked so diligent in my life and yet I can’t seem to get ahead. It’s one step forward and 10 steps back.

i’m not asking for the world I’m not asking for $1 million but if anybody is able to help donate in order for me to be able to pay my general bills and my medical bills and everything that’s just piling up by being in here so long mentally and physically it’s taking a toll. So if you can find it in your heart to donate whatever you may be able to help and donate with. It also provides with transportation for family members to bring me the necessities and everything like that, which is also a financial hardship on everybody I understand the times are tough for everybody around. But if you could find it in your heart and make a donation I would be so so very grateful for your generosity. ❤️ thank you all and God bless. !