Emma and Abby suffer from an Ultra-Rare Disease that causes them to have seizures, prevents them from learning to sit, walk, talk, or play with toys, and keeps them from living a care-free childhood like they deserve! AND...they are the only two known people in THE WORLD who suffer from this disease.
The world of genetics is moving so rapidly, a CURE is possible! We are on a mission to fund research of their genetic condition and find a treatment to give them the best life possible.
Our initial goal is to fund a Zebrafish and Mouse model that replicate the specific genetic mutations seen in Emma and Abby. This will be a critical first step to help us understand this ULTRA-rare disease and will help us get a little closer to our end goal of a CURE!
We need your help to make research and drug development possible. If you are able, join Team Emma and Abby and follow along our genetic Odyssey as we fight for a cure and better, healthier life for these two sweet sisters!
We thank you from the bottom of our hearts, we are forever grateful!
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- Carol Baily
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