Research towards treatment for Emma and Abby

Lightning and Love Foundation 

Emma and Abby suffer from an Ultra-Rare Disease that causes them to have seizures, prevents them from learning to sit, walk, talk, or play with toys, and keeps them from living a care-free childhood like they deserve! AND...they are the only two known people in THE WORLD who suffer from this disease. 

The world of genetics is moving so rapidly, a CURE is possible! We are on a mission to fund research of their genetic condition and find a treatment to give them the best life possible.

Our initial goal is to fund a Zebrafish and Mouse model that replicate the specific genetic mutations seen in Emma and Abby. This will be a critical first step to help us understand this ULTRA-rare disease and will help us get a little closer to our end goal of a CURE!

We need your help to make research and drug development possible. If you are able, join Team Emma and Abby and follow along our genetic Odyssey as we fight for a cure and better, healthier life for these two sweet sisters!

We thank you from the bottom of our hearts, we are forever grateful!

Donations (178)

  • Susan English
    • $100 
    • 10 mos
  • John De Groot
    • $50 
    • 10 mos
  • Anonymous
    • $100 
    • 1 yr
  • Carolyn Schellang
    • $50 
    • 1 yr
  • Lauren Browne
    • $250 
    • 2 yrs


Littleton, CO

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