Hope for Constance
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Aloha All,
My name is Nicole Riveira. I am a Mother of 3 beautiful loving children. On December 6, 2016 my children and I had just reached hilo walmart to buy a couple of things when all of a sudden my youngest child named Constance Ponce whom is 9 years old grabbed her chest and yelled out "MOMMY MY HEART!!!!!!!!!!" At this moment I turned to looked at my precious baby whom was pale like a ghost, screaming and crying at the top of her lungs in pain collapsed to the floor. Upon collapsing to the floor she was breathing and had a pulse. Without any hesitation my son Gauge whom is 11 years of age picked her up off of the floor i told my eldest daughter Cerciyana lets go were taking her to the hospital!!!. As were running to the car I began to call 911 , at this point we are driving out of walmart stuck in traffic. Constance regains contiousness. And is still screaming and crying due to the pain in her heart, she is still pale ,sweating, has shortness of breath when I asked her what does her pain in her heart feel like she said it felt like someone was punching her on her heart very hard. As a mother you try to stay calm, but all I can think about was Ohh my god my daughter is having a heart attack. I'm still on the phone with the dispatcher whom was extremely nice told me not to worry EMS is on the way if I could pullover so they could intercept her from me. I pulled into Bank of Hawaii parking lot where I kept my phone on Bluetooth as I put my vehicle in park, I ran around to calm her and to Check her pulse, her heart rate was 169 - 182 bpm varying. All her symptoms still persist I told her to just lay back take deep breaths help is on its way. Even though my heart sunk to my stomach I could not let her see me fall apart. And that's when she told me "MOMMY I DON'T WANT TO DIE, AM I GOING TO DIE?????" I told her no baby your not going to die the ambulance is almost her ok baby just relax. Meanwhile the dispatcher is still on the phone with me asking how she is doing so I tell him her symptoms are still present. A moment later HFD and EMS came. They started to ask her some questions and asked me some questions then they put her on the Machine to check her stats, with one EMT shaking his head to the other one saying get her on the EKG machine. After they did there reading they told me "mom somethings wrong with her heart, somethings not right, as I over here the other 2 talking to each other saying we need to get her to the hospital now. I asked if my eldest daughter could ride with her and they said no for safety reasons. I said ok. I got in my car and begin to follow them to Hilo Medical Center.I began to call my family, her grandparents and my Boyfriend whom is not her Biological father but whom has raised her from when she was a little girl.
As we reach Hilo Medical Center we weren't allowed to go into her room for they were working on her. As I patiently waiting they finally let me and my children in . As we got into her room she looked droopy and tired and still was having shortness of breath, still pale as a ghost and her eyelids and around her eyes were Pink. The doctor came in said they need to do another EKG on her because no one knows where the EKG from The EMS went. Her symptoms were present for about 15 to 20 min. After running tests on her and all the family members trickling in the doctor came into the room and asked to speak to the adults only. My Heart Sunk even deeper. He stated he was worried and that she needs to get to Kapiolani Children's Hospital to see the pedestrian Cardiologist. Her test shows that she has an Electrical Shortage in her heart, what he believes she has is BRUGADAS Syndrome which is a fatal Heart Arythmia and she can die from it. The doctor tried contacting the Kapiolani Children's Hospital for 4 hours and got no response from the children's cardiologist. My daughter was discharged in stable condition and we were to follow up the next day with her PCP to get a referral for kapiolani. The next day she had 5 attacks in the morning . We got in to see the doctor and they made a referral for the following week with Kapiolani Hospital. As the days followed she had 13 attacks and still no answers. She was kept home from school because she had 2 attacks at school and was admitted in hilo medical center because of her cardiac arythmia. As of today we've been back and forth to the hospital a number of times my daughter is still having these attacks today counting is 26 attacks from the 6th of December.
My daughter was completely taken out of school and I am not working due to her condition.she needs to be monitored 24/7. I am raising funds to help offset the costs of flying her to Boston Children's Hospital for a second opinion. If you can help us in any way it would be greatly appreciated. From the Bottom of my Heart my family and I would like to say thank you.
My name is Nicole Riveira. I am a Mother of 3 beautiful loving children. On December 6, 2016 my children and I had just reached hilo walmart to buy a couple of things when all of a sudden my youngest child named Constance Ponce whom is 9 years old grabbed her chest and yelled out "MOMMY MY HEART!!!!!!!!!!" At this moment I turned to looked at my precious baby whom was pale like a ghost, screaming and crying at the top of her lungs in pain collapsed to the floor. Upon collapsing to the floor she was breathing and had a pulse. Without any hesitation my son Gauge whom is 11 years of age picked her up off of the floor i told my eldest daughter Cerciyana lets go were taking her to the hospital!!!. As were running to the car I began to call 911 , at this point we are driving out of walmart stuck in traffic. Constance regains contiousness. And is still screaming and crying due to the pain in her heart, she is still pale ,sweating, has shortness of breath when I asked her what does her pain in her heart feel like she said it felt like someone was punching her on her heart very hard. As a mother you try to stay calm, but all I can think about was Ohh my god my daughter is having a heart attack. I'm still on the phone with the dispatcher whom was extremely nice told me not to worry EMS is on the way if I could pullover so they could intercept her from me. I pulled into Bank of Hawaii parking lot where I kept my phone on Bluetooth as I put my vehicle in park, I ran around to calm her and to Check her pulse, her heart rate was 169 - 182 bpm varying. All her symptoms still persist I told her to just lay back take deep breaths help is on its way. Even though my heart sunk to my stomach I could not let her see me fall apart. And that's when she told me "MOMMY I DON'T WANT TO DIE, AM I GOING TO DIE?????" I told her no baby your not going to die the ambulance is almost her ok baby just relax. Meanwhile the dispatcher is still on the phone with me asking how she is doing so I tell him her symptoms are still present. A moment later HFD and EMS came. They started to ask her some questions and asked me some questions then they put her on the Machine to check her stats, with one EMT shaking his head to the other one saying get her on the EKG machine. After they did there reading they told me "mom somethings wrong with her heart, somethings not right, as I over here the other 2 talking to each other saying we need to get her to the hospital now. I asked if my eldest daughter could ride with her and they said no for safety reasons. I said ok. I got in my car and begin to follow them to Hilo Medical Center.I began to call my family, her grandparents and my Boyfriend whom is not her Biological father but whom has raised her from when she was a little girl.
As we reach Hilo Medical Center we weren't allowed to go into her room for they were working on her. As I patiently waiting they finally let me and my children in . As we got into her room she looked droopy and tired and still was having shortness of breath, still pale as a ghost and her eyelids and around her eyes were Pink. The doctor came in said they need to do another EKG on her because no one knows where the EKG from The EMS went. Her symptoms were present for about 15 to 20 min. After running tests on her and all the family members trickling in the doctor came into the room and asked to speak to the adults only. My Heart Sunk even deeper. He stated he was worried and that she needs to get to Kapiolani Children's Hospital to see the pedestrian Cardiologist. Her test shows that she has an Electrical Shortage in her heart, what he believes she has is BRUGADAS Syndrome which is a fatal Heart Arythmia and she can die from it. The doctor tried contacting the Kapiolani Children's Hospital for 4 hours and got no response from the children's cardiologist. My daughter was discharged in stable condition and we were to follow up the next day with her PCP to get a referral for kapiolani. The next day she had 5 attacks in the morning . We got in to see the doctor and they made a referral for the following week with Kapiolani Hospital. As the days followed she had 13 attacks and still no answers. She was kept home from school because she had 2 attacks at school and was admitted in hilo medical center because of her cardiac arythmia. As of today we've been back and forth to the hospital a number of times my daughter is still having these attacks today counting is 26 attacks from the 6th of December.
My daughter was completely taken out of school and I am not working due to her condition.she needs to be monitored 24/7. I am raising funds to help offset the costs of flying her to Boston Children's Hospital for a second opinion. If you can help us in any way it would be greatly appreciated. From the Bottom of my Heart my family and I would like to say thank you.
Organiser
Nicole Riveira
Organiser
Hilo, HI