Qi loss his battle to Alagille Syndrome!
We lost my lover boy today!! He fought long and hard but in the end we just couldn’t keep him suffering and he decided to leave to be at peace with Christ!
I have to give thanks for all the memories we made together and all the guidance I have received!
Qianzai’el was born to give us life and to change everyone he met around him; He was amazing, protective of those he loved and determined to live everyday despite his pain.
Qi is what mommy called him was born with a rare liver disease called Alagille Syndrome disease he wasn’t like any other child you meet because he fought this disease his whole life even after receiving a liver transplant in April of 2020. He had long journey of multiple surgeries full of Liver biopsies, Cardiac Cath, Broviac placements, g-tube placement and a liver transplant.
Despite being smaller than kids his age and having multiple delays in his life you just couldn’t tell him differently; He loved to have fun with his older 4yr sister and he loved the beach, he loved our late night Denny’s dates, he couldn’t walk but he got around the house however he chooses, He loved Catboy from PJ mask and his was just an all around good baby!
He had his days when he would noticed he wasn’t like other kids and he would get frustrated but he wouldn’t stay that way for long! I’m happy he was well loved while he was here on earth!
Qianzai’el Philogene passed on 07/16/2021 @ 6:02 pm.
I wish I had more to say because he wasn’t a one dimensional person and he gave this world so much love!! But he done All He could and I’m happy he’s at peace and no more machines breathing for him but the lord in all that he was he deserved a peaceful ending to his new life with Christ!
Since his passing was very unexpected we’re raising funds to help pay for his funeral expenses and to bring more awareness to this rare liver disease (Alagille Syndrome) and how it affects the everyday life of the individuals diagnosed.
I pray for favor that we reach our goal because my baby boy was everything to each and every one of us!
https://memorials.bellsfuneralservices.com/qianzaiel-philogene/4671974/index.php