Please help Marin in his fight for a better life

My name is Hristina Tofiloska. I am organizing this fundraiser for my nephew Marin. He is 2.5 years old diagnosed with Shukla-Vernon Syndrome (SHUVER). This syndrome is extremely rare, with only few people in the world diagnosed. The medical community still hasn't found a proper way of treatment. His only hope for a cure as of now is stem cell transplant treatment, but it is costly, and his family can not afford it. He will have a stem cell transplant treatment in LIV Hospital in Istanbul, Turkey. Even though he is 2.5 years old, he can't walk, sit, or play by himself. Because of the syndrome, he can't even swallow solid food. When he was two months old, he had heart surgery where doctors gave him very little chance to survive it. A year after that, he had to have kidney surgery. He is the biggest fighter I know! His daily life includes physio therapiest, speech therapist, special educator, neurofeedback treatments and other alternative medicine treatments that his family came across.

Please help us make his only hope for a cure possible. Every donation is greatly appreciated it by my family and me.