My Daniel's Specialized Equipment
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Our Journey : Hi guys, as most of you will know my names Tracey and im on a fundraising mission to raise funds for my very good friends Stacey & Rob , but most importantly for their son ...... Daniel and the much needed specialist equipment hes so desperately needs in his basic everyday life. Not that Daniels need are basic, as most of you are well aware his needs are very complex.
Now, this campaign has been up and running previously for the same reason, but as well as caring solely for Daniel, Stacey & Rob now have even less time to concentrate on fundraising as their youngest daughter Jaymie, who is 3, has recently been diagnosed with autism, and all their time is being spent looking after their children and making sure their lives can run as smoothly as possible with as little dissruption as possible. As well as autism, Jamie suffers from a condition called PICA ...... this means that she will chew and eat litterally anything she can get her hands on, this is a massive danger to Jaymie so she also needs constant supervion and care.
So .......... I, with the go-ahead from the McGregors, have took on the mission to raise as much money as possible to help them achieve this.
When Daniel was 4 months old he was diagnosed with severe cerebral palsy, which affected all of his limbs, due to a lack of oxygen being delivered to his brain during childbirth. This was a devostating blow to his parents.
Basically, Daniel has very limited movement in all of his limbs, if any at all. He is unable to sit unaided, as well a being unable to walk or talk. His muscles are that tight that he physically cant stretch out his limbs. He also suffers from cramp and pain constantly. As the years have passed, Daniel has been diagnosed with a huge range of conditions such as , epilepsy, microcephaly, cortical visual impairment, asthma, severe learning disabilities and hip displacement ...... to name a few ........ and ontop of all this , he also has problems with his teeth, bowels, skin, gaining and losing weight and sleeping.
All of Daniels life, he has been in and out of hospital, and is due to go back in soon for his 3rd hip surgery. Despite all of these disabilities, and health problems, Daniel is the happiest young man you will ever meet, and is a very much loved part of their family. As parents, Stacey & Rob have never wanted or asked anyone other than Daniels own grandma, ( stacey's mam ) caring for him. In Stacey's own words ........ "how would a stranger know if my boy is in pain, he cant talk so he wouldn't be to tell anyone".......... "he cant move any of his limbs so wouldnt be to point to a certain place on his body" ......... Over the years Daniel's parents and grandma have learnt and noticed, different little noises he makes could mean he needs something or is in pain somehow ....... these, such little things to an untrained, eye , could acctually mean life or death for Daniel.
So due to his complex needs, and erratic sleeping pattern, ( he sometimes goes days without sleep, and im talking 3 solid days and nights) Stacey and Rob obviously need to re-charge their battrys, more so now with Jaymie and her level of care. This is where Daniel's grandma Joyce steps in. Joyce is Daniels one and only respite, and first class carer. Joyce provides every aspect of care to Daniel that Stacey & Rob do, with the same amount of love and dedication as his mam and dad. Joyce is a very important part of not only Stacey & Robs lives but Daniel's and the other McGregor children as Stacey & Rob have trust in her not only as a grandma but as a first class carer too, they have every confidence in the quality of care Daniel gets whilst with his grandma, and they positively know that their son is receiving top quality care when he is away from them.
........... "My mother provides all of these qualities and more" says Stacey ........ " We DO NOT want respite from strangers, we could not deal with that at all, i would feel ( and no-one can tell me different ) that i was sending our boy away because he was different, and that, we would never think of doing. " this way, Daniel is only visiting grandma, which he's done all his life and which all grandchildren do from time to time".
" My mother is now struggling to care for Daniel slightly, because he is getting bigger and heavier, so specialiist equipment is now needed more than ever. We have asked for help with purchasing/obtaining this such things for Daniel's grandma's home, but were informed that we can not get help for/granted specalised equipment that daniel desperately needs as it's classed as a 'second home', and Daniel does not reside at this place permanently....... This is despite us saving the local authorities thousands of pounds per year in expensive specialized respite care, and allowing that facility to offer its services to another child and their families who dont have the close support that we do from my mother.
Since the page started out , Daniel has had a much needed, brand new profiling bed , very kindly donated to him from , to which we are forever grateful for. We have also completed 'The Whitley Bay Warrior Beach Assault course' and ' Necastle Colour Rush' charity assault course, and collected sponsors for these which has enabled us to purchase a much needed specialised chair which Daniel so desperately needed , and uses everyday now.
The next big thing on our list is to raise enough funds to be able to create a 'Wet Room' at Daniels grandma's , so she can continue to give him the very best of care whilst he's staying over there. Currently, Joyce is having to lift and move Daniel around by carrying him and this is becoming harder by the day...... as Daniel is more than often sick and when he is Joyce can only move him from one place to another , to be able to clean him up. Daniel is like a dead weight as he can't use any limbs, and Joyce is a very smalled framed woman. And only then is she able to wash him down and make sure he is clean and all his 'nooks and cranny's' are clean !!!! ......... So as you can all see , this wet room is an absolute must for Daniel's day to day care and not only that, for his grandma's own safety too......... I must add that Daniel aboslutely loves being in a shower !!!
I have set this page up, not only for donations or sponser money, but also to keep everybody informed on what has and is going on in the world of 'My Daniel'. I will update it regularly with fundraising events people may want to take part in for 'My Daniel'......... and if or when money does start coming in, you will all be updated on what your money is being used for.
Thank you all so much for taking the time to have a look at my go-fund-me page , and i welcome anybody to come and join me on the 'MyDaniel' fundraising train.
Me and The McGregor family are truely grateful for anybody who wishes to get involved wether it be making a donation, attending a fundraising event with us, or even just giving my page a like and share.
May i also add ........ Daniel has a facebook page which Stacey regularly update ..... Please take 5 minutes to head over there and have a look and give it a cheeky like and share ......... Also i have a group set up on facebook called ' My Daniel Fundraising Group ' , on there i run bonus ball's and stuff like that where you can win some fab prizes for as little as £1, and all money made goes into Daniel's pot......... Feel free to head over and take a look , a like and share would be fantastic too ....... the more people who know about us , the more people can talk about us !!!
Once again thank you all so so much for your time and we look forward to interacting with u all very soon ........ Much Love .......... The McGregor Family ....... Stacey (daniels mam) , Rob (daniel's dad), Bobbie (daniel's sister) , Jaymie ( daniel's sister ) and Joyce ( daniel's grandma ) ...........
And last but not least Meeeee ............
Tracey Jones
( family friend )
( fundraiser )
( event organiser )
All of the above and more :)
https://www.facebook.com/teammydaniel/
https://facebook.com/groups/160630554404967/
Now, this campaign has been up and running previously for the same reason, but as well as caring solely for Daniel, Stacey & Rob now have even less time to concentrate on fundraising as their youngest daughter Jaymie, who is 3, has recently been diagnosed with autism, and all their time is being spent looking after their children and making sure their lives can run as smoothly as possible with as little dissruption as possible. As well as autism, Jamie suffers from a condition called PICA ...... this means that she will chew and eat litterally anything she can get her hands on, this is a massive danger to Jaymie so she also needs constant supervion and care.
So .......... I, with the go-ahead from the McGregors, have took on the mission to raise as much money as possible to help them achieve this.
When Daniel was 4 months old he was diagnosed with severe cerebral palsy, which affected all of his limbs, due to a lack of oxygen being delivered to his brain during childbirth. This was a devostating blow to his parents.
Basically, Daniel has very limited movement in all of his limbs, if any at all. He is unable to sit unaided, as well a being unable to walk or talk. His muscles are that tight that he physically cant stretch out his limbs. He also suffers from cramp and pain constantly. As the years have passed, Daniel has been diagnosed with a huge range of conditions such as , epilepsy, microcephaly, cortical visual impairment, asthma, severe learning disabilities and hip displacement ...... to name a few ........ and ontop of all this , he also has problems with his teeth, bowels, skin, gaining and losing weight and sleeping.
All of Daniels life, he has been in and out of hospital, and is due to go back in soon for his 3rd hip surgery. Despite all of these disabilities, and health problems, Daniel is the happiest young man you will ever meet, and is a very much loved part of their family. As parents, Stacey & Rob have never wanted or asked anyone other than Daniels own grandma, ( stacey's mam ) caring for him. In Stacey's own words ........ "how would a stranger know if my boy is in pain, he cant talk so he wouldn't be to tell anyone".......... "he cant move any of his limbs so wouldnt be to point to a certain place on his body" ......... Over the years Daniel's parents and grandma have learnt and noticed, different little noises he makes could mean he needs something or is in pain somehow ....... these, such little things to an untrained, eye , could acctually mean life or death for Daniel.
So due to his complex needs, and erratic sleeping pattern, ( he sometimes goes days without sleep, and im talking 3 solid days and nights) Stacey and Rob obviously need to re-charge their battrys, more so now with Jaymie and her level of care. This is where Daniel's grandma Joyce steps in. Joyce is Daniels one and only respite, and first class carer. Joyce provides every aspect of care to Daniel that Stacey & Rob do, with the same amount of love and dedication as his mam and dad. Joyce is a very important part of not only Stacey & Robs lives but Daniel's and the other McGregor children as Stacey & Rob have trust in her not only as a grandma but as a first class carer too, they have every confidence in the quality of care Daniel gets whilst with his grandma, and they positively know that their son is receiving top quality care when he is away from them.
........... "My mother provides all of these qualities and more" says Stacey ........ " We DO NOT want respite from strangers, we could not deal with that at all, i would feel ( and no-one can tell me different ) that i was sending our boy away because he was different, and that, we would never think of doing. " this way, Daniel is only visiting grandma, which he's done all his life and which all grandchildren do from time to time".
" My mother is now struggling to care for Daniel slightly, because he is getting bigger and heavier, so specialiist equipment is now needed more than ever. We have asked for help with purchasing/obtaining this such things for Daniel's grandma's home, but were informed that we can not get help for/granted specalised equipment that daniel desperately needs as it's classed as a 'second home', and Daniel does not reside at this place permanently....... This is despite us saving the local authorities thousands of pounds per year in expensive specialized respite care, and allowing that facility to offer its services to another child and their families who dont have the close support that we do from my mother.
Since the page started out , Daniel has had a much needed, brand new profiling bed , very kindly donated to him from , to which we are forever grateful for. We have also completed 'The Whitley Bay Warrior Beach Assault course' and ' Necastle Colour Rush' charity assault course, and collected sponsors for these which has enabled us to purchase a much needed specialised chair which Daniel so desperately needed , and uses everyday now.
The next big thing on our list is to raise enough funds to be able to create a 'Wet Room' at Daniels grandma's , so she can continue to give him the very best of care whilst he's staying over there. Currently, Joyce is having to lift and move Daniel around by carrying him and this is becoming harder by the day...... as Daniel is more than often sick and when he is Joyce can only move him from one place to another , to be able to clean him up. Daniel is like a dead weight as he can't use any limbs, and Joyce is a very smalled framed woman. And only then is she able to wash him down and make sure he is clean and all his 'nooks and cranny's' are clean !!!! ......... So as you can all see , this wet room is an absolute must for Daniel's day to day care and not only that, for his grandma's own safety too......... I must add that Daniel aboslutely loves being in a shower !!!
I have set this page up, not only for donations or sponser money, but also to keep everybody informed on what has and is going on in the world of 'My Daniel'. I will update it regularly with fundraising events people may want to take part in for 'My Daniel'......... and if or when money does start coming in, you will all be updated on what your money is being used for.
Thank you all so much for taking the time to have a look at my go-fund-me page , and i welcome anybody to come and join me on the 'MyDaniel' fundraising train.
Me and The McGregor family are truely grateful for anybody who wishes to get involved wether it be making a donation, attending a fundraising event with us, or even just giving my page a like and share.
May i also add ........ Daniel has a facebook page which Stacey regularly update ..... Please take 5 minutes to head over there and have a look and give it a cheeky like and share ......... Also i have a group set up on facebook called ' My Daniel Fundraising Group ' , on there i run bonus ball's and stuff like that where you can win some fab prizes for as little as £1, and all money made goes into Daniel's pot......... Feel free to head over and take a look , a like and share would be fantastic too ....... the more people who know about us , the more people can talk about us !!!
Once again thank you all so so much for your time and we look forward to interacting with u all very soon ........ Much Love .......... The McGregor Family ....... Stacey (daniels mam) , Rob (daniel's dad), Bobbie (daniel's sister) , Jaymie ( daniel's sister ) and Joyce ( daniel's grandma ) ...........
And last but not least Meeeee ............
Tracey Jones
( family friend )
( fundraiser )
( event organiser )
All of the above and more :)
https://www.facebook.com/teammydaniel/
https://facebook.com/groups/160630554404967/
Organizzatore
Tracey Jones
Organizzatore