Join Mateo's Journey

Hi there! I am Mateo “Teo” Negrete, born at just 27 weeks, 2 lbs 6.8oz. I am incredibly loved and very special. So special I’m less than one in a million! I have paternal UPD14, otherwise known as Kagami-Ogata Syndrome (KOS). This means I have to work very hard to breathe because of the shape of my chest/ribs and tiny but mighty lungs. I have a few organs protected in a sac growing on the outside of my belly button called an omphalocele, but I like to call it my “O”. I am a mighty warrior and if you’d like to help me along my journey, my family would greatly appreciate your support.