HopeFund for Alayna's Brain Surgery
Doação protegida
This is my beautiful, brilliant, and kind little sister, Alayna. Her amazing parents are Suzette and Scott Neary. She's nine years old, and she's been diagnosed with Moyamoya Disease.
Moyamoya Disease is an extremely rare, progressive disease that affects the vascular system in Alayna's brain. The internal carotid arteries, which supply blood to important parts of the brain, begin to narrow and thicken, causing bloodflow to the brain to slow down, making it more likely for blood clots to form.
“Moyamoya” means “puff of smoke” in Japanese. The disease gets its name from the wispy, tangled appearance of the new blood vessels that emerge in the brain (as the body attempts to compensate for the inadequate blood supply).
This reduced blood and formation of blood clots are major risk factors for either a transient ischemic attack (TIA) also called a “mini-stroke,” or a full-fledged stroke.
Since her early childhood, Alayna has been having symptoms that were written off as migraines, such as slurred speech, drooping on one side of face, and numbness of the tongue and one side of the body.
She was not having migraines. She has been continuously experiencing transient ischemic attacks without anyone realizing simply because the disease is so rare. Only after advanced imaging tests were done were they able to tell us her diagosis.
Moyamoya Disease is a progressive condition, meaning that symptoms worsen over time and the child's chances of suffering a stroke increases. As of right now, the right side of Alayna's brain has vessels that are completely blocked. She needs to have surgery to fix these problems before she suffers any other TIAs, or worse, a debilitating stroke.
The only proven treatment for is surgery to create a healthy, adequate new supply of blood for the impacted areas of the brain. We are trying to raise money in order to take Alayna to the Children's Hospital in Boston, where they have set up a wonderful program for Moyamoya patients, so that she may receive the care she needs to heal and grow.
During this time, many members of our family won't be able to work. We are extremely close and my sister is the absolute best part of my life. We have no idea at this time how much our insurance will cover for her treatment, if anything at all. We are only asking for anything you can give, as we will be traveling back and forth, and tending to Alayna's very strict care for many months post-surgery. We only want her to have the absolute best care as she possibly can, as many neurosurgeons do not have the experience with her condition that she needs.
She is the most vibrant, hilarious, generous person to have in your life. She loves basketball and video games and all of her friends at her amazing school. We know this is going to change everything for her. We simply want to make that transition as seamless as possible for our wonderful baby girl.
Thank you so much for your support. Please feel free to reach out to me personally with any advice or questions. Stay Kind.
Moyamoya Disease is an extremely rare, progressive disease that affects the vascular system in Alayna's brain. The internal carotid arteries, which supply blood to important parts of the brain, begin to narrow and thicken, causing bloodflow to the brain to slow down, making it more likely for blood clots to form.
“Moyamoya” means “puff of smoke” in Japanese. The disease gets its name from the wispy, tangled appearance of the new blood vessels that emerge in the brain (as the body attempts to compensate for the inadequate blood supply).
This reduced blood and formation of blood clots are major risk factors for either a transient ischemic attack (TIA) also called a “mini-stroke,” or a full-fledged stroke.
Since her early childhood, Alayna has been having symptoms that were written off as migraines, such as slurred speech, drooping on one side of face, and numbness of the tongue and one side of the body.
She was not having migraines. She has been continuously experiencing transient ischemic attacks without anyone realizing simply because the disease is so rare. Only after advanced imaging tests were done were they able to tell us her diagosis.
Moyamoya Disease is a progressive condition, meaning that symptoms worsen over time and the child's chances of suffering a stroke increases. As of right now, the right side of Alayna's brain has vessels that are completely blocked. She needs to have surgery to fix these problems before she suffers any other TIAs, or worse, a debilitating stroke.
The only proven treatment for is surgery to create a healthy, adequate new supply of blood for the impacted areas of the brain. We are trying to raise money in order to take Alayna to the Children's Hospital in Boston, where they have set up a wonderful program for Moyamoya patients, so that she may receive the care she needs to heal and grow.
During this time, many members of our family won't be able to work. We are extremely close and my sister is the absolute best part of my life. We have no idea at this time how much our insurance will cover for her treatment, if anything at all. We are only asking for anything you can give, as we will be traveling back and forth, and tending to Alayna's very strict care for many months post-surgery. We only want her to have the absolute best care as she possibly can, as many neurosurgeons do not have the experience with her condition that she needs.
She is the most vibrant, hilarious, generous person to have in your life. She loves basketball and video games and all of her friends at her amazing school. We know this is going to change everything for her. We simply want to make that transition as seamless as possible for our wonderful baby girl.
Thank you so much for your support. Please feel free to reach out to me personally with any advice or questions. Stay Kind.
Organizador e beneficiário
Shannon Aplin
Organizador
Pensacola, FL
SuzetteScott Neary
Beneficiário