Meet my son, Seth. He lives with a rare genetic brain disease called HABC leukodystrophy. For the past 13 years, I have prayed for a treatment for my son. At last, a treatment is available. We will be receiving ASO infusion treatments at Rush Hospital in Chicago.

While there is no charge for the medication itself, I have been informed that the appointment fee, anesthesia, and related expenses will total approximately $4,000 per visit. These appointments will occur every two months until the maximum medication dose is reached, and then every three months thereafter. This estimate does not include the cost of airfare, hotel accommodations, meals, and other travel-related expenses.

Although I have a stable career, I am still unable to afford the full cost of these treatments on my own. Therefore, we humbly ask for your support. This treatment represents the miracle we have prayed for over the past 13 years. If you are unable to donate, we kindly ask that you keep us in your prayers.

Thank you very much. ❤️