Hi everyone,

I’m reaching out today with a humble heart to ask for support during one of the most challenging chapters of my life.

Recently, I was diagnosed with Erdheim-Chester Disease (ECD). ECD is an extremely rare, ultra-complex type of blood cancer (a histiocytic neoplasm) where the body overproduces white blood cells, causing severe inflammation and organ stress throughout the body. Because it is so rare, navigating treatment requires specialized medical teams, frequent testing, and intensive care protocols.

Unfortunately, due to the severe physical toll of this disease and the demands of ongoing treatment, I am currently unable to work.

While I am focusing every ounce of my energy on fighting this condition and following my medical plan, the reality of everyday financial responsibilities hasn’t paused. Without a steady income, managing basic living expenses—rent/housing, groceries, utilities, and transportation to specialist appointments—along with out-of-pocket medical costs has become overwhelming.

I created this campaign to help ease the financial strain so I can focus entirely on my health and recovery.

How Your Support Helps:

Basic Living Expenses: Keeping up with rent, utilities, and everyday necessities while out of work.

Medical & Travel Costs: Offsetting co-pays, specialized prescriptions, and travel to medical centers familiar with ECD.

Every single donation, no matter the size, makes a meaningful difference. If you aren't able to contribute financially, simply sharing this campaign with your network means the world to me.

Thank you so much for your kindness, thoughts, and support as I fight Erdheim-Chester Disease.

With gratitude,

Henry Ackerman