Hi, my name is Laura Noyola-Acevedo and I am fundraising for Angel Figueroa and her son, Silverio. Silverio was born at 37 weeks due to hydrocephalus (fluid to the brain). He has had 4 brain surgeries. The first surgery starting at 2 days old. During this surgery, he suffered a major brain bleed to the right side of his brain causing brain damage. Doctors don't know the extent of damage because his brain is still growing and developing. While he was hospitalized, he was diagnosed with a rare genetic disease called X-Link Adrenoleukodystrophy (ALD).
ALD is a deadly genetic disease that affects 1 in 18,000 people. It most severely affects boys and men. The brain disorder destroys myelin, the protective sheath that surrounds the brain's neurons--the nerve cells that allow us to think and to control muscles.
Due to Silverio's brain damage, he was recently diagnosed with Spastic quadriplegic cerebral palsy. He also suffers from Infant Spasms which is seizures or spasms in babies.
After almost 2 years of waiting, Silverio finally has an appointment on 6/30 with a genetic doctor who specializes in ALD at Dell Children's Hospital in Austin. With your help, you would be helping with traveling expenses and medical equipment needed for travel. Silverio is in need of a medical seat that offers trunk support which will allow him to have better head control and use of his arms/hands. Also, he needs a special harness designed to help with building muscle memory for walking.
Please support this GoFund Me by making a donation and then sharing it with your network. It would be greatly appreciated. On behalf of Angel and Silverio, thank you and continue to keep them in you your prayers.
-Much love and God Bless