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Help My Sister Battle Against Liver Cancer (FHCC)

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Türkçe açıklamayı aşağıda bulabilirsiniz.

I want you to meet my adorable little sister, Asude Cehreli. She loves animals and looks after two cats named Jelly and Gandalf. One of her dreams is to become a veterinarian someday. She's the most remarkable and resilient individual in our family, a much better photographer, my dearest friend, travel companion, and the most trusted advisor. She means the world to me!

Her battle began at the age of 22 with symptoms of diarrhea and significant weight loss, leading to the discovery of three lesions, including a sizable mass in her liver parenchyma and nodular lesions suggestive of lymph node involvement in May 2023. Asude received a diagnosis of stage 3 liver cell carcinoma (also known as Fibrolamellar Hepatocellular Carcinoma or FHCC), which is an ultra-rare form of liver cancer that accounts for about 1% of people with primary liver cancer in the US.

Despite undergoing treatment with three different targeted therapies (also known as smart drugs) aimed at shrinking the lesions for potential surgery from June 2023 to February 2024, Asude did not achieve the desired outcome. Follow-up PET and MRI scans in February 2024 revealed that the lesions continued to grow and metastasize to the peritoneum and adrenal glands.

Thanks to the assistance of Prof. Dr. Aysegul Kargi, who facilitated our connection with Dr. Ahmed Omar Kaseb from MD Anderson Cancer Center in Texas, they decided on a treatment plan that included radiotherapy, targeted therapy, and chemotherapy. After we got the plan, we attempted to hospitalize Asude at the Sloan Cancer Center in New York, but unfortunately, our efforts were hindered by the high cost of treatment. They sent a document about estimated expenses ranging from $75,000 to $525,000 for surgery, $90,000 to $445,000 for chemotherapy, and $90,000 to $335,000 for radiation therapy.

As soon as we got almost a million dollar estimated cost of treatment, Asude went back to Turkey to start her new treatment journey. However, she suddenly faced complications such as lung fluid buildup post-port insertion for chemotherapy, leading to lung surgery on March 25, 2024. Following her recovery, chemotherapy treatment commenced. As of May 2nd, she has completed her 4th dose of chemotherapy. She is scheduled to receive two more doses, followed by PET and MRI scans to monitor treatment progress. At this stage, we only wish for Asude to recover as soon as possible and continue her interrupted life in good health.

Before I conclude my words, let me provide a more detailed example: There are several medications available in the United States but not covered by Turkish insurance authorities, such as Lenvima (Lenvatinib 30 capsules, 24mg/day). This medicine costs at least $8450 per month when we endeavor to procure it independently. Additionally, it is uncertain how long Asude will require this medication. You can imagine how challenging it is to simultaneously cover medical and daily expenses with delayed or no insurance reimbursements and loans taken out for medications.

Last but not least, if the chemotherapy yields the desired results, Asude may even have the opportunity to undergo surgery at the Sloan Cancer Center with your donations. We are truly grateful for your presence and support to alleviate our financial burdens. Our heartfelt thanks go out to everyone who will contribute to the campaign, offer their prayers, or share the campaign with friends.

I will provide updates on any future developments as often as I can.
Thank you for standing by us during this challenging time.
Cehreli Family❤️

A shining warrior in the oncology room.

Intouchables reunited at Orange Reservoir in New Jersey.

New career steps:)


She pays the price of her beauty in terms of chemo currency

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    Organizador

    Sayim Cehreli
    Organizador
    Chatham, NJ

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