Bennett’s Tumor medical care with Milton Waner MD

Hi, I am Amy, Bennett’s Mimi. Kalyn, Bennetts Mommy, is my daughter. When we received the news during the last month of Kalyn’s pregnancy, that a tumor was found on Bennetts forehead, naturally fear set in. So many unanswered questions and worries for first time parents. Not how you envision you first child birth experience.

Bennett was delivered a week early via C section at UVA Hospital. He spent the first 24 hours in the nicu and was closely monitored by the top specialists. All signs showed a healthy baby boy with this mystery bump that needed many more visits and tests as doctors and Mom and Dad try to construct an intervention to treat the tumor. The ultimate goal, to remove the tumor and cause no harm to other parts of baby Bennett. With the time Kalyn has spent connecting with families of children with these rare anomolies, she has been lead to an expert surgeon in New York City. Dr Milton Waner carries an international reputation and long standing success rate for removing these types of legions and appropriately documents the results. Today Bennett’s parents took the leap of faith and arranged to meet with Dr Waner. Knowing a 30 minute call with the expert would cost $350 out of pocket, it’s not a matter of should we do it? It’s when can we and we will figure out the financial side of it later. Thats where I come in. Kalyn has been protective over Bennett. She just wants those who see Bennett not to see him for his bump. My heart hurts for this perfect beautiful baby boy and I want the best for him. We don’t want this bump to be what identifies him. There are pros and con's to this surgery. But Bennett’s family trusts that having this performed while he is still young will give the best outcome.

The tentative plan is to schedule this surgery in Manhattan with Dr Milton Waner. This will require a week of accommodations, travel costs for mom and dad, hospital stay, surgery costs and any other fees for care that is not covered by insurance. Please share this page to anyone who you feel may be inclined to help with Bennett’s life changing surgery in NYC.