
A Better Life for Livie
Donation protected
We are currently fundraising for Olivia (Livie), she is 9 months and she has been diagnosed with Spinal Muscular Atrophy -Type 1.
This is a devastating diagnosis for Livie and her family. Her nerves that connect her muscle tissue to her spinal cord and brain are gradually deteriorating so she is currently struggling with the everyday movements of a 9 months old like grabbing, turning her head, crawling, swallowing etc. Without the right treatment, it is unlikely for children in her situation to live past their 2nd birthday.
There is hope! A treatment is available for Livie in the USA. It is called Zolgensma and is known to be "the most expensive drug in the world." This treatment comes with the hefty price of $2.1million.
We at Donegal Plumbing & Heating Supplies want to do everything we can to help little Livie.
Please donate a minimum of 10euro to help us help Livie and give her a fair chance at getting this life changing treatment.
GoFundMe is not responsible for any offers, promises, rewards or promotions made or offered on GoFundMe campaigns."
Thank you for supporting Livie's cause!
#AbetterlifeforLivie #TeamLivie
This is a devastating diagnosis for Livie and her family. Her nerves that connect her muscle tissue to her spinal cord and brain are gradually deteriorating so she is currently struggling with the everyday movements of a 9 months old like grabbing, turning her head, crawling, swallowing etc. Without the right treatment, it is unlikely for children in her situation to live past their 2nd birthday.
There is hope! A treatment is available for Livie in the USA. It is called Zolgensma and is known to be "the most expensive drug in the world." This treatment comes with the hefty price of $2.1million.
We at Donegal Plumbing & Heating Supplies want to do everything we can to help little Livie.
Please donate a minimum of 10euro to help us help Livie and give her a fair chance at getting this life changing treatment.
GoFundMe is not responsible for any offers, promises, rewards or promotions made or offered on GoFundMe campaigns."
Thank you for supporting Livie's cause!
#AbetterlifeforLivie #TeamLivie
Co-organizers (2)
Katie Mulhern
Organizer
Team Livie
Beneficiary
Kevin Martin
Co-organizer