Basy's OIT Journey
Donation protected
Hi there,
This is our little boy Sebastian and his story of living with life threatening food allergies.
When Sebastian was 6 months of age he had his first ever taste of yoghurt which sent him into a scary Anaphylactic reaction. Not long after Sebastian's first reaction we learnt that he was anaphylactic to all dairy products and eggs. We realised very quickly that our lives had to dramatically change. Our specialist prescribed us a Epipen that we carry with us at all times.
Sebastian has unfortunately experienced other anaphylactic reactions since his initial diagnosis. He is very sensitive to these foods, so much so that he has reactions from mearley touching trace amounts.
Through out the years we have seen many specialists and made every attempt to increase Sebastian's tolerance to these foods without success. As you can imagine even simple things like going to play at the park or attending pre school can be life threatening. Sebastian's has unfortunately had to miss out on many experiences children his age experience as it is deemed too dangerous. It is heartbreaking seeing your child miss out.
Curently there are no treatments for Anaphylactic food allergies in Australia. We have found Dr Douglas Jones from Utah, USA who specialises in offering Oral Immunotherapy to help treat Anaphylacsis. Dr Jones has a very high success rate. For us to undertake in the treatment program I must move with our 3 children to Utah, USA for 6-9 months. I will be given a medical visa which does not allow me to work whilst I am there. My husband will remain in Australia to work and look after our puppy dogs. We have estimated our cost to exceed $60000.
We are desperately trying to fund our journey ourselves by selling items that are considered luxuries and working extra shifts.
We are not very good at asking for help, but are willing to do anything to get our little man the treatment he needs. The thought of Sebastian being able to go to school, attend birthday parties, eat a meal outside of our home or attend a play date without the fear of a life threatening reaction occuring bring tears to my eyes.
Please help if you can, even the smallest of donations will assist us in our Journey. We have had confirmation that we will be going to Utah in December to start our life transforming treatment.
Thank You for taking the time to read our story.
The Potter Family
This is our little boy Sebastian and his story of living with life threatening food allergies.
When Sebastian was 6 months of age he had his first ever taste of yoghurt which sent him into a scary Anaphylactic reaction. Not long after Sebastian's first reaction we learnt that he was anaphylactic to all dairy products and eggs. We realised very quickly that our lives had to dramatically change. Our specialist prescribed us a Epipen that we carry with us at all times.
Sebastian has unfortunately experienced other anaphylactic reactions since his initial diagnosis. He is very sensitive to these foods, so much so that he has reactions from mearley touching trace amounts.
Through out the years we have seen many specialists and made every attempt to increase Sebastian's tolerance to these foods without success. As you can imagine even simple things like going to play at the park or attending pre school can be life threatening. Sebastian's has unfortunately had to miss out on many experiences children his age experience as it is deemed too dangerous. It is heartbreaking seeing your child miss out.
Curently there are no treatments for Anaphylactic food allergies in Australia. We have found Dr Douglas Jones from Utah, USA who specialises in offering Oral Immunotherapy to help treat Anaphylacsis. Dr Jones has a very high success rate. For us to undertake in the treatment program I must move with our 3 children to Utah, USA for 6-9 months. I will be given a medical visa which does not allow me to work whilst I am there. My husband will remain in Australia to work and look after our puppy dogs. We have estimated our cost to exceed $60000.
We are desperately trying to fund our journey ourselves by selling items that are considered luxuries and working extra shifts.
We are not very good at asking for help, but are willing to do anything to get our little man the treatment he needs. The thought of Sebastian being able to go to school, attend birthday parties, eat a meal outside of our home or attend a play date without the fear of a life threatening reaction occuring bring tears to my eyes.
Please help if you can, even the smallest of donations will assist us in our Journey. We have had confirmation that we will be going to Utah in December to start our life transforming treatment.
Thank You for taking the time to read our story.
The Potter Family
Organizer
Irene Potter
Organizer
Ormeau QLD
