Please support our family and help build Attalie's Legacy: TERMINAL ILLNESS

Meet Attalie Brooklyn-Marie Meza: A girl with a rare genetic condition who has left her mark on everyone she meets. Our rainbow girl. She is 3 years old.

In July of 2025, Attalie was diagnosed with a rare genetic mutation and deletion affecting her CACNA1B gene. This means that both copies of this gene that she inherited are damaged copies, and this has reframed her DNA sequencing. This results in non-stop absent seizure activity and multiple epileptic seizures a day. Her seizures have caused irreparable brain damage and severe regression of motor skills. The variant of this gene mutation that Attalie was diagnosed with has never been studied, and there were only 6 cases in the world that could be compared to hers. Similar, but not the same. Attalie is terminally ill, and she is rapidly declining. Her condition has weakened her muscles, and she cannot walk, talk, or move herself. She has never walked, never crawled, and never been able to feed herself. It took us two years of fighting to get her a diagnosis, and it took dozens of doctors, tests, and scans to even get us an answer. An answer with no data, no clinical trials, no hope.

As of this week, Attalie has been placed on hospice care, and she is quickly starting to refuse most interventions that are helping keep her respiratory at a stable baseline.

We need to start preparing her funeral arrangements and choosing who will handle the services, but local grants only cover so much. This is where I ask for help from my community.

My name is Alyssa - I am Attalie's mother, and I am asking for help. I am the only source of income that supports Attalie, her four siblings in the home, and the household. Even though I have worked tirelessly to build a career and a stable life, this is something I never could have been prepared for. Most of Attalie's life, I have worked 60-100 hour work weeks to support my family. I don't qualify for any government assistance outside of Medicaid, but that has been her secondary insurance, and my portion of her bills from the last year are over $3k and collecting interest quickly. I work hard, but in this economy, we live paycheck to paycheck, and I am desperate to spend my last days with my baby girl. In April, my mother was also diagnosed with Stage 3 Breast Cancer, and this last weekend, we all said our goodbyes to my grandmother as she spends her last days in heart failure. I haven't been able to spend time with any of my family during this time because I have to stay focused on supporting my own household. The genetic testing that diagnosed Attalie, also gave me a diagnosis. I have Lynch Syndrome and all 81 genes that can carry positive cancer markers were tested. All 81 genes lit up positive for cancer markers, now I need more genetic testing as well as genetic counseling for cancer specifically.

We don't get to give her a wedding, buy her a prom dress, or watch her go into college. However, we can give her a funeral that is worthy of her. All I want is to make memories with her, spend time with my family, and have the time to grieve her loss.

Attalie has 6 siblings - 4 of which live in the home with her full-time. They are going to need a lot of care, attention, therapies, and joy to help them navigate losing not only their sister but their great-grandmother as well. Her siblings are 16, 13, 11, 10, 8, and 1. For the next 5 months, every child has a birthday, and as you can imagine, that only amplifies the heaviness of our situation. Attalie is our rainbow baby after secondary infertility and 6 miscarriages - by all accounts, she has been our miracle. To have to plan the end of her life 3 years later is daunting when I have spent her whole life working to support her, our family, and to learn new ways we could adapt our life to her needs. Her father, Adam, has dedicated his entire life and career to caring for her and being her caregiver so that I could work. It is going to take so much healing to help us get through this.

All funds that are raised are directly for the care of Attalie, her funeral, care for our family, and to help us start her legacy. Living For Attalie. We really hope to educate and bring awareness to other children like her; give her life a purpose and allow us to heal through helping others.

Please share our story ❤️