Aicardi-Goutières Syndrome Awareness
Detraibile fiscalmente
The AGS Awareness Organization is a student-led initiative committed to raising awareness and funds for Aicardi-Goutieres Syndrome (AGS).
AGS is a rare genetic disorder that affects individuals all over the world. However, the disorder continues to be under-diagnosed. Research allows us to develop a better understanding of AGS, leading to advances in diagnosis and treatment. Current research is aimed at finding new methods for treating and ultimately preventing or curing AGS.
All donations made through this GoFundMe go directly toward the Aicardi Goutieres Syndrome Americas Association (AGSAA). Whether you donate a monetary amount or take the time to share our cause with others, any support is greatly appreciated!
AGS is a rare genetic disorder that affects individuals all over the world. However, the disorder continues to be under-diagnosed. Research allows us to develop a better understanding of AGS, leading to advances in diagnosis and treatment. Current research is aimed at finding new methods for treating and ultimately preventing or curing AGS.
All donations made through this GoFundMe go directly toward the Aicardi Goutieres Syndrome Americas Association (AGSAA). Whether you donate a monetary amount or take the time to share our cause with others, any support is greatly appreciated!
Organizzatore
AGS Awareness
Organizzatore
Cumming, GA
Aicardi Goutieres Syndrome Advocacy Association
Beneficiario