Andrew McIntyre (MND) medical expenses

We are now in January 2020. I was diagnosed with bulbar-onset ALS/Motor Neurone Disease on Tuesday 17th May 2016 and our lives changed forever. Shock, devastation and every other conceivable emotion has followed since that day and continues to do so, but we are determined not to let this destroy our family. I am 48 years old, married and have two young children. I can no longer walk, talk, eat or move any part of my body and I am on a ventilator 24/7 to assist my breathing. Amyotrophic Lateral Sclerosis (ALS) or Motor Neurone Disease (MND) is a progressive disease that attacks the motor neurones or nerves in the brain and spinal cord.  This means that messages gradually stop reaching muscles which leads to weakness and wasting.  At present, there is no cure for ALS/MND and the only treatment available on the NHS is Riluzole which doctors believe can extend my life by 3 to 4 months.  All other treatments provided are for management of symptoms to achieve the best quality of life. I was given a lifespan of 2 years, but I’m still here fighting, 4 years on! I will not give up and I also believe this is down to the other drugs I am taking, Ibudilast and Copper CuAstm. Unfortunately, these drugs are privately funded and expensive. I have spent £13,500 of the donations that were received previously on this page on my medication. I am now starting to run out of funds and I would be extremely grateful if anyone would like to help and donate towards my ongoing medical expenses to enable me to continue to fight and be with my wife and children for many more years. Also, there is a stem cell treatment out there called NurOwn and it is in a phase III trial with the results due out at the end of 2020. Again, this is something that will need to be privately funded. I will try anything to stay with my family. If anyone would like to do their own fundraising, I would appreciate that very much.  Thank you so much Cheers Andy McIntyre