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Ceri's Medical Fund

£1,190 of £1,500 goal

Raised by 62 people in 15 months
Created June 14, 2017

Ceri Jones is 21 years old, she was diagnosed in November with a rare cancer called Adenoid Cystic Carcinoma.  This type of Cancer arises within secretory glands and is most commonly the major and minor salivary glands of the head and neck. There appears to be no effective chemotherapy for metastatic and/or unresectable ACC. In March 2017, Ceri underwent a major 36 hour operation which consisted of Ceri's left eye being removed, her upper left jaw and upper left facial bones to be replaced with titanium metal, and her face to be reconstructed. As the Cancer was in the advanced stage and had spread to her left lymph node and behind the left eye, and was in the top left hand pallet in her mouth. As a result of this Ceri had to have her muscle and skin on her right thigh, grafted into her top pallet in her mouth. Although the tumour was removed Ceri still has residual cancer cells. Which is best treated with Proton Radiotherapy because standard Radiotherapy can break down her bone structure in her face, and cause major problems to her face and mouth in the near future. Ceri has now returned from Jacksonville Florida, from receiving Proton Radiotherapy and has seen her consultant in Liverpool. They are happy with her response from treatment. And scars and grafts look very good. They have discharged her to her original consultant in Sunderland royal hospital. And she now awaits scans and an operation on her teeth. Everybody's support Is helping ceri be so positive throughout all of this.

Thankyou all x

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Hey all, just letting you all know everything is ok up to now. I'm just low on iron but other than that. Everything is fine. I have had recent scans and they show no reoccurrence of the cancer what I had. I have had new dentures put in on the left top side of my mouth, which I'm finding quite comfortable for now. However they are trying to come to terms with another operation for bolts and pins to be implanted into my new pallet. I however, am waiting on my new silicone eye to be ready which is made from silicon wax. It looks identical to my other eye. Which I'm amazed at. I still have to have regular check ups every 6 weeks for the time being. The reason I haven't posted for a while is because I wanted to see how things went so I could give you all a complete review on how I am. I would just like to thank everybody still for their support it means alot. Thankyou.

#wecanbeatthis# ♡♡
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Been for my consultation up in Sunderland today, my consultant was rather amazed how I've overcome everything. He checked my scars, and they are fine. The pain in my leg he has offered me lazor treatment, he has also said in about 12 month time I'm allowed teeth implants and also an eye implant.. meaning a clip on eye. I still can't breathe through my nose as the the surgery I had has blocked my left side and the right side is blocked because of the radiotherapy I had. The consultant I seen today has a schedule for me and I see him every 6 weeks for the time being. I then have an mri scan in the next couple of weeks then it will be every 3 months. I will be having numerous blood tests and tests on my other eye following a hearing test. He checked the graft in my mouth and he said that my mouth is looking really healthy. With regards to my graft (pallet) I shouldn't actually be able to feel it because the nerves shouldn't of connected in there properly yet. Although he checked it out with his equipment, and he's amazingly shocked how I can feel it. He's never known a person to recover so fast through having such intense surgery. I would just like to take my time and thank every one of you for your support it has been a good one up to now. Let's just hope these scans go good... There's hope at the end of the tunnel ♡♡ thankyou xx
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Hi thanks for still donating to my go fund me page, I am now currently back living in the UK. I'm hoping florida proton treatment has worked in some way shape or form. I had a consultation 2 weeks ago in Aintree University Hospital in Liverpool, and all they could do was praise me and smile. They have said my graft and scars are perfectly fine, next step is first scan and operation for some new teeth. Liverpool discharged me (must be happy) so I am now currently back to seeing the DR in Sunderland hospital the one who referred me. Hopefully all goes well. And we stay to sticking positive. Thanks guys xx
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Treatment starts tomorrow ❤
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£1,190 of £1,500 goal

Raised by 62 people in 15 months
Created June 14, 2017
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JH
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James Howard
28 days ago
WL
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Will Lindsay
1 month ago
DL
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Dan Lindsay
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LL
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Lilian Leith
1 month ago
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Anonymous
1 month ago
£5
Michelle Jones
10 months ago
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10 months ago
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