Brandon Loney

Sorry for the long overdue updated I have had a stressful couple of weeks I have had a lot change this past couple weeks, I recently had to move from millet to nisku , to live in a place cheaper on rent and closer to my moms care facility and my brother. Although this isn’t an ideal place to be living it will have to do for the time being! My partner and I recently have parted ways… something I didn’t expect and has left me extremely hurt,broken,confused and stressed on top of everything else going on I don’t want to get into that to much Last week i had a nerve conduction studies test done to which I am still waiting on an appointment later next week to find out what the next actions will be Right now it’s just me against the world it feels like lately …. If I seem quiet or distant from updating everyone I just have a lot going on if you are able to please continue to support me while I navigate an extremely broken health system. And a world that just wants to keep me down I am still fighting being in pain my medication doesn’t always seem to help sadly Please continue to share or donate to help me reach my goal to get healthy and get my life back thank you for your time

Earlier this week, I spent roughly 33 hours in the hospital dealing with complications related to my intrasacral meningocele (Tarlov cyst). I was experiencing excruciating pain along with serious bladder and bowel issues. During this visit, two doctors who had previously treated me actually apologized for not taking my symptoms as seriously as they should have in the past. This time, my bladder problems became severe enough that I had to have a catheter inserted and removed multiple times. I was eventually transferred to the U of A Hospital for an MRI in hopes of getting some answers and proper care. Unfortunately, despite everything I had been experiencing and explaining, I once again felt that my concerns were not fully listened to or understood. While I am grateful for the people who did try to help me, the hospital visit ultimately left me feeling frustrated and without the answers or treatment I desperately need. This experience has only reinforced how important it is for me to find a specialist who understands this rare condition and can provide the treatment I need. I am continuing to raise funds toward surgery and the costs involved in getting the care that I have been unable to access here. Thank you to everyone who has donated, shared my story, checked in on me, or simply offered support. It truly means more than I can put into words.

During the last 4 weeks my pain has increased severely as well as my mental health has been on a big decline . My doctors last week have been playing around with my medications and up the dose ages of pain medication I am currently stuck waiting for a nerve conduction study aswell well as an EMG (electromyography) Unsure of exactly how long of a wait I am looking at, I am currently on the wait list for a cancellation opening in hopes to get this test done sooner With my mental health declining as many around me have suggested in the past I am making a step by getting an appointment to help manage the mental health side of things. Hope everyone has enjoyed there summer, thank you so much for all the support it truly means the world to me and my family thank you