NICKS MND JOURNEY
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Throughout the 18 years of my life ive been blessed with the best dad any one could have ever hoped for, caring, kind, loving and very funny. Who would have thought that a month ago we were to recieve the worst news ever. My dad has been diagnosed with Motor Neurone Disease and unfortunately there is no cure yet. Symptoms and the rate of progression of this disease varies from person to person and doctors give and average life expectancy of 3-4 years.
MND is a disease in which the nerve cells that control the muscles enable us to speak, breathe, swallow, deteriorate and die, which causes weakness in the muscles that gets worse and eventually leads to paralysis. We are devastated with the news and there are no words to describe how this has changed our lives.
My dad Nick Lias at only 43 years of age is a husband, father, son, brother, brother inlaw, cousin and friend to many. He has two children, myself and my sister Tiani aged 13 and his loving wife Penny. He has a heart of gold and a humor full of jokes and laughter with a happy personality and loved by all. With recieving this bad news my dad is unable to lift his leg properly and drags it at times, he has slight slurring and slower speech which we have been noticing getting worse. My dad has been told to live his life to the fullest, we don't know when this terrible disease will take over.
Our journey begins, we will be travelling over seas due to some positive feedback on stem cell treatment. There are treatments that can help my dads quality of life and we will do what ever it takes to get these treatments which will help prolong this disease.
Any help would be appreciated.
Please help share my dads story and support our journey!!
MND is a disease in which the nerve cells that control the muscles enable us to speak, breathe, swallow, deteriorate and die, which causes weakness in the muscles that gets worse and eventually leads to paralysis. We are devastated with the news and there are no words to describe how this has changed our lives.
My dad Nick Lias at only 43 years of age is a husband, father, son, brother, brother inlaw, cousin and friend to many. He has two children, myself and my sister Tiani aged 13 and his loving wife Penny. He has a heart of gold and a humor full of jokes and laughter with a happy personality and loved by all. With recieving this bad news my dad is unable to lift his leg properly and drags it at times, he has slight slurring and slower speech which we have been noticing getting worse. My dad has been told to live his life to the fullest, we don't know when this terrible disease will take over.
Our journey begins, we will be travelling over seas due to some positive feedback on stem cell treatment. There are treatments that can help my dads quality of life and we will do what ever it takes to get these treatments which will help prolong this disease.
Any help would be appreciated.
Please help share my dads story and support our journey!!
Organizer
Christina Lias
Organizer
Nightcliff NT
