Mariah Rose's medical expenses
Don protégé
Dear friends and family,
First of all let me say that Mariah is an amazing, strong, little girl with a fire inside something fierce. We have all learned so much from going through all this with her. We haven't been through nearly as much as she has, but we are all going through this. Together as a family.
Our daughter Mariah will be going in for another big surgery on the 25th of the month. She is scheduled for a 7 hour surgery.
The surgeon is changing the surgical plan. They have decided to remove the (VEPTR) the expanding titanium rod that was in place for the last 3 years. The doctors are saying that it is starting to cause more problems then it is helping. It causing her neck to be pushed farther to the side. It is compressing her lung on one side. It is NOT effecting her in any other way besides structurally. She is smart, funny, rebellious and stubborn (as she should be) talkative, wise beyond her years, and she has a spirit to envy. She Always (for the most part) finds the joy in things.
They are going to work on her neck. She has some anomalies in her cervical spine. Our surgeon is going to address the fused discs in her neck. He is planning on removing the rod, then they want to traction, and stabilize her neck. She will have the first surgery, heal for a few weeks then She will have another surgery and she will be in a halo and we will be in the hospital for at least 2 to 2 half months. Depending on how she does in surgeries, and how she begins to heal it may be longer. We could be there until October 3rd (her 7th birthday) but could be longer (closer to Halloween).
I hope that is closer to her birthday, but she will really be the decider of the release date, depending on how she is healing.
Her daddy and I are going to do our very best to make this as smooth as possible. Between her daddy and me we will be there the whole time she is in surgery, recovering and healing. This is going to be the hardest surgery yet.
First of all let me say that Mariah is an amazing, strong, little girl with a fire inside something fierce. We have all learned so much from going through all this with her. We haven't been through nearly as much as she has, but we are all going through this. Together as a family.
Our daughter Mariah will be going in for another big surgery on the 25th of the month. She is scheduled for a 7 hour surgery.
The surgeon is changing the surgical plan. They have decided to remove the (VEPTR) the expanding titanium rod that was in place for the last 3 years. The doctors are saying that it is starting to cause more problems then it is helping. It causing her neck to be pushed farther to the side. It is compressing her lung on one side. It is NOT effecting her in any other way besides structurally. She is smart, funny, rebellious and stubborn (as she should be) talkative, wise beyond her years, and she has a spirit to envy. She Always (for the most part) finds the joy in things.
They are going to work on her neck. She has some anomalies in her cervical spine. Our surgeon is going to address the fused discs in her neck. He is planning on removing the rod, then they want to traction, and stabilize her neck. She will have the first surgery, heal for a few weeks then She will have another surgery and she will be in a halo and we will be in the hospital for at least 2 to 2 half months. Depending on how she does in surgeries, and how she begins to heal it may be longer. We could be there until October 3rd (her 7th birthday) but could be longer (closer to Halloween).
I hope that is closer to her birthday, but she will really be the decider of the release date, depending on how she is healing.
Her daddy and I are going to do our very best to make this as smooth as possible. Between her daddy and me we will be there the whole time she is in surgery, recovering and healing. This is going to be the hardest surgery yet.
Organisateur
Sarah Guthrie
Organisateur
Houston, TX