Xiolia's Journey

Xiolia began to developmentally regress over the summer of 2017 and after multiple trips to different hospitals, treatments and lab work she was diagnosed on November 30, 2017 with metachromatic luekodystrophy (MLD).   The Become a Match website reads that this  "is a disease you’re born with that affects metabolism. Metabolism is how the body breaks down food into energy. In MLD, the body is missing an important protein (enzyme) to break down fat-based substances. When the fat-based substances aren’t broken down, they build up and cause damage. In MLD, the brain, nervous system, bones and other tissues are damaged. This causes problems with the ability to speak, hear, learn, and move."

Xiolia's birthday is August 11, 2015.  She is a beautiful 2 year old who now is diagnosed with a condition that threatens her life.  Many children diagnosed with this condition may not survive past the age of 5. 

It is recommended that she go to the Masonic Children's Hospital at the University of Minnesota to see if she is eligible for a bone marrow transplant and any other availabable treatments as there is currently no cure.   She is to go there the week of December 18th.   
She lives with her mother, Maureen, father, Javier and her big brother Xavier in Pooler, GA.   Javier is an independent contractor and he is the only income for the family.   Funds are needed to help with travel expenses and to maintain the household so the family can be together as they work to find Xiolia a cure through bone marrow transplants and chemo that will help her little body produce the needed enzymes. 

THIS IS URGENT as they will be traveling the week of December 18th.  

Please give to Xiolia's Fund; give her a chance at a treatment to help fight MLD.