Super Syd's Medical Treatments

Meet Sydney aka The Mighty Bean! This is our 7 year old daughter who has had to conquer the odds from day 1! Sydney was born with Cerebral Palsy. She never met any of the "normal" developmental milestones. In fact, by one, Sydney still couldn't sit on her own or roll over. She started physical therapy, occupational therapy, and speech therapy at 6 months old. We were told she would never talk or walk, and that Sydney would be in a wheelchair. We didn't believe this!
We couldn't!
You see she was our first girl after having 2 boys! She was the gift we prayed for!
We pushed her hard! We worked with the most amazing therapists! And at 3 years old Sydney took her first steps with a walker! We all stood there with tears in our eyes while we saw this beautiful little girl smile from ear to ear!
As the years have passed, we have learned so much more about Sydney's illness. Today, we know she also has epilepsy, scoliosis, IIH, autoimmune disease, and demylinating polyneuropathy.

WE NEED YOUR HELP!!! We have been working hard for a year now to get genetic testing done. Sadly, we continue to be denied!
The insurance company says that genetic testing will not change her treatment plan!
The doctors are baffled! You see a child with CP shouldn't get worse! We have been told what Sydney has may be life threatening. We need to know what she has! It will change her treatment! It will give us MUCH needed answers!

Thank you,
Rock and Amber Gaylord