My name is Mirryn and I have a very rare disease called CLN1 Battens which there are very few of us who have this. Due to this I can not sit or stand on my own and have to lie down all the time. While spending time at Rachel House I have the use of a fantastic seat called a P Pod which I love and it protects my posture while I am lying in it. This seat cost lots of money and I would love if you could help me and my team raise the money to help to purchase this fantastic seat.