Hello friends and family,

As we enter into February the month of "Love" following January which was "Coffin-Siris Syndrome Awareness month"

​ We are reaching out to ask for your support and to show some "Love" ❤️in helping our Girl, Bailey (B), attend a very special event this coming July !!!

​As many of you know, Bailey lives with Coffin-Siris Syndrome (CSS)—an extremely rare genetic condition that affects her everyday life in many ways.

Because it is so rare, we often feel like we are navigating this journey on our own and would love to become more educated on her behalf.

​

The Opportunity:

From July 23rd to July 26th, 2026, the Coffin-Siris Syndrome Foundation is hosting its annual family conference in Orlando, Florida.

This is our( 1st time ever to be able to attend) and also a rare chance for us to:

​

Meet world-renowned specialists and researchers who understand and is specialized in her condition.

​

We will also be able to Connect with other CSS families who truly understand our daily life and Journey !!!

​ Let's help Bailey meet other children just like her, showing her she is not alone. This moment will be so special for us all !

​How You Can Help ?

Traveling to a conference with a special needs child involves more than just a standard vacation. We are hoping to raise $5000 to help cover:

​

•Conference Registration Fees for our family.

​•Specialized travel needs.

​•Lodging at the conference hotel (Drury Plaza Hotel – Disney Springs).

•​Medical/Accessibility Expenses while away from home.

​Any contribution, no matter the size, gets us one step closer to Orlando

If you aren't able to donate, sharing this page with your network would mean the world to us.

Also, be on the Lookout for some upcoming Fundraisers we plan to prepare in the next month or so .

Some ideas/events we are planning are as followed:

•Yard Sale/Bake Sale

•B's Lemon-tea Stand

•Sale Food Plates

•Tshirt Sale

Also ,any Donations or contributions for these events are also appreciated

​Thank you all so very much for loving and supporting us on this journey!

It takes a Village......

and Im so Thankful for ours

​

With love and gratitude,

The Montjoy's ‍‍