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Rare GI disease diagnosis

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Hi friends and family, 

As some of you know my 17 year old daughter Mimi has been battling gastrointestinal disease for a few years now. Mimi has undergone multiple invasive procedures and we had some scary complications including internal bleeding and severe swelling of the stomach lining. She also had a complication during a procedure which required multiple surgeons to be present. Mimi struggles with malnutrition and it’s currently a life risking factor. We’ve had endless hardships with providers and insurance. Currently we have to travel to Boston for Mimi’s complex rare disease treatment. As a result of this it has hit our family hard financially as I’ve had to take time off from working at my own business. As she goes to Boston next week for her fourth major procedure this year, we’d appreciate from the bottom of our hearts all the support we can get. All I want is to get my girl healthy again to do the things she loves. 
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    Gwynne Duncan
    Organisator
    New York, NY

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