
Portable Oxygen Concentrators - Medical Needs
Donativo protegido
“J.J.” Jeffrey James Bebout
Hi, my name is Kristen Celmer,
and proud to be J.J.’s mom.
I am on this platform to help raise money for medical needs, specifically portable oxygen concentrators.
J.J. is 32 years old, a father, a life partner Samantha Lewis, and the owner of Glass Arrow Coffee. J.J. was diagnosed when he was 3 years old with an extremely rare genetic disease Niemann Pick type B. This disease is progressive and life-shortening.
Nieman Pick type B now presents with:
- enlarged spleen
- lesions on liver
- lesions on adrenal glands
- lung disease
He is now requiring oxygen and really needs the portable oxygen concentrators to be able to work to provide for his family without having to lug around oxygen tanks.
Today, J.J. describes his life as amazing; with a 2 ½ year-old toddler, a small business, and a wonderful partner, life is the best it has ever been.
With life so great, J.J. is carrying this disease's emotional and psychological effects and his mortality.
I hope that covering the cost of the oxygen concentrators will help alleviate some of this. Thank you.
For more Information on Niemann Pick Type B:
Organizador y beneficiario
Kristen Celmer
Organizador
Denver, CO
Jeffrey Bebout
Beneficiario