Hi all, I am asking you to help support my best friend Dee. She and Joel have four beautiful sons. Their 13 year old son, Rob, is currently in ICU at Queensland Children's Hospital.

Rob has been in hospital since the 23rd of September and has been in ICU for a week now.

Rob has an extremely rare, undiagnosed genetic disorder. Despite extensive genetic testing of their family, there is no match on the international genetic database which makes them, medically, very hard to treat. Joey their youngest boy also has this genetic disorder.

Rob also battles with epilepsy, diagnosed at age of 4, which has worsened significantly in the past 3 months with him having up to 30 seizures a day.

Rob's genetic disorder is uncharted territory. Drs can only treat the symptoms.

Daily living has become extremely difficult for Rob and prior to being admitted to QCH in September, Rob could no longer walk unassisted. His speech and ability to communicate has regressed.

Rob has not verbally or physically responded to his family or medical staff for 3 weeks.

Rob was put in an induced Coma 7 days ago to help control his seizures.

Dee and Joel have been taking turns being by his side whilst travelling to and from the Sunshine Coast to care for their three boys at home.

Dee and Joel have been unable to work.

I urge you all who read this, to donate if you can, as their loss of income has been very significant.

A household of 4 boys and with Christmas around the corner, any donation will help.

They are a beautiful family and should be so proud of how well they have coped.

Dee is the kindest, most selfless person I know and I appreciate anyone who can help my beautiful friend.

Thank you, Jen