Hello,

Our names are Dustin and Erin, we are fundraising for future medical expenses, and for a therapy, treatment or cure for our 12 year old, twin boys. They have a rare neurodegenerative genetic disorder called PKAN. As of right now, there is no cure, but there is hope, as a trial is on its way to the FDA, and other trials, or therapies are also in the works. The fundraising goal may change depending on what their medical needs are, and what therapy, or treatment comes available.