Help Olivia continue to live the best life possible

Join Us for Olivia's 10k Run/Walk!

We invite you to participate in our 10k run/walk to support Olivia and raise vital funds for her ongoing treatment. Your participation not only contributes to a great cause but also helps us spread awareness about Doose Syndrome and the impact it has on families like ours.

To make this event a success, we ask each participant to obtain a minimum sponsorship of £100. This funding will directly support Olivia’s medication and help her continue on her journey towards a safe & brighter future.

Here’s how you can help:

1. **Sign Up**: Register for the 10k run/walk and get ready to make a difference!

2. **Gather Sponsorship**: Reach out to friends, family, and colleagues to secure your sponsorship. Every contribution, big or small, brings us closer to our goal.

3. **Spread the Word**: Share your fundraising page on social media to inspire others to join or support you!

Together, we can make a meaningful impact in Olivia’s life. Thank you for your support and for being a part of this journey with us.

Meet Olivia: A Journey of Resilience and Hope

Hello, my name is Julie, and I’m the proud mother of an incredible young girl named Olivia. At just 11 years old, Olivia has been courageously battling Doose Syndrome, a challenging and debilitating form of epilepsy, since she was just 15 months old.

Doose Syndrome is a progressive condition that has transformed Olivia’s life. Over the years, her seizures escalated from minimal daily occurrences to over 300 seizures a day, leading to multiple hospitalisations due to non-convulsive status epilepticus. We have explored various treatment options through the NHS, including anti-epileptic medications that unfortunately came with horrific side effects. In February 2021, Olivia underwent a corpus callosotomy, a procedure that we hoped would help her, but instead, her daily seizure count surged to over 300. This dramatic increase, combined with debilitating side effects, forced Olivia to use a wheelchair for her safety and prevented her from attending school fulltime. It was heartbreaking to witness her transformation from a joyful, smiling child to one who was often angry and frustrated.

In September 2021, I reached out to Curaleaf Clinic (formerly Sapphire Clinic) after learning about their oil treatment and hearing the success stories of other children with medically resistant epilepsy. In January 2022, we received Olivia’s first prescription, and since then, we have been on a journey of hope and healing. I began fundraising in June 2022 to support her ongoing treatment.

While Olivia is not yet seizure-free, the positive changes have been remarkable. Her seizures have drastically reduced, and she has been able to wean off some of her NHS medications, significantly reducing the side effects. This year alone, Olivia has embraced life with renewed joy—enjoying a school adventure trip where she canoed, & climbed, she also celebrated her graduation, attended her P7 prom, and performed in her school summer show.

Olivia is loving life again, but funding her medication is crucial for her to continue living the best life possible. Your support can help ensure she receives the treatment she needs to thrive. Together, we can make a difference in her journey towards a brighter future.

Thank you for considering supporting Olivia and our cause. Your generosity means the world to us!

Below is a link to Olivia’s story in a local newspaper article. https://www.dailyrecord.co.uk/news/scottish-news/glasgow-girl-epilepsy-doose-syndrome-27132065.amp