Before Oct Sion was full of health, fit and exceptionally bright. He got injured in school rugby , hurt his collar bone and his health deteriorated so quickly after that. What started with a spasm on his shoulder blade turned into him not being able to walk properly , think properly, he is having spasms and seizures. He is unable to go to school and cannot do most things.
Drs were baffled as his test results were fine so we had to fight so hard to be taken seriously and Sion has been treated so badly being told it’s in his head and he’s making it up. We have now been told Its FND functioning neurological disorder, which we had never heard of. We have now come to see there is no help for children with fnd on the NHS and we have to find and fund all sions treatments. He really needs to be in a rehab centre for intense treatment, we really need your help getting there.
there are success stories of recovery out there but they have always been fought and funded themselves. We need Sion better, he has not complained or felt sorry for himself and is always trying to stay positive
- Jordan Dainton
- Kelly Willetts