GNB1 Advocacy Group

We are the Board Members of the GNB1 Advocacy Group, Inc., a 501(c)3 nonprofit organization. We are parents to children who have a mutation in their GNB1 gene, which is a protein gene that sends messages to cells all over the body. Our children are affected in varying degrees and varying ways, but primarily with developmental delays, neuromuscular issues, and seizures.

We are working with researchers worldwide to hopefully find a treatment for this genetic mutation in our children's lifetimes.

Our mission statement is: Dedicated to GNB1 awareness and support, our nonprofit unites families impacted by this rare genetic disorder. We connect parents, facilitate collaboration with researchers, and provide crucial resources. Our mission is to foster a network that empowers and advances understanding, ultimately enhancing the lives of those affected by GNB1.

The money we are raising will support our mission. Please visit our website (GNB1advocacy.org) for more information.

We are incredibly grateful for your support.