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Support Stroke Victim Hope & Caleb
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The ventilator is off. She is breathing on her own. Tube should be coming out as soon as doctor arrives this morning!!
8 am update
Two steps forward, one step back is still one step forward...
Hope was off the ventilator for over 2 hrs but her O2 slipped into the 80’s near the 2.5 hr mark. During the 2-hrs she was doing response training and she may have gotten tired so doctors think she is not quite ready to come off ventilator. She has developed a condition in her lungs found by X-ray. Not sure if there is bacteria present but checking samples.
They will put her into a chair later today and work her a little - trying to get her stronger. Her left side responses are a little sluggish but she can still do them. She is coming out of her situation but just needs time to get strong. She is making great progress and needs our continued prayers.
No head scans are scheduled for today so progress is good in this area. If conditions deteriorate, they will get more scans as needed. General antibiotics are being started for the lung issue and as the culture test comes back they will fine tune the antibiotic.
"For I know the One whom my soul trust and He IS ABLE" 2 Timothy 1:12
Prayer Warriors lets keeps Hope lifted up to the One who cares for us the most ❤️❤️❤️ Update 1/12/18- The brain surgeon talked to Caleb yesterday and told him that by all medical science, test and everything they saw Hope should not be alive and the fact that she IS is a MIRACLE!! The brain surgeon actually used/said the word miracle!
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Priorities:
- Left arm mobility is still a need.
- continued progress with blood clot issues
- progress with her liquid diet
- general strength to get her body moving again. Lack of movement has made her sore especially on neck and back. Update 1/16/18 Hope was transferred to a regular room yesterday and she had a pretty good night of rest. We will get an update from the stroke doctor around 10:00. Physical and occupational therapy will be coming through as well. She is eating good and seems each meal is a step towards normal. Her obvious concerns are the stroke / clot resolutions. At last report drs were pleased with the progress. Headaches have continued to be her nemesis. Concerns as a result of the stroke are her eyes. She is working hard to get them open and currently they are misaligned but she can see when the eyelids are held open. Her arm and hand motor skills suffer. Most work hand-in-hand with the eyes and depth perception deficiencies. Her legs and feet appear to be in good shape although weak. They are transitioning her blood thinner meds and could see results in a few days. This would allow for the IV to come out. A comment from her new nurse...”we just read her transcript, this girl is a miracle” ... but as my brother stated, “of course, we already knew that.” Wednesday 1/17 More and more progress... Hope has continued to move forward leaps and bounds. She is completely off IVs and the leads are removed. She is off the Heprin and Antibiotics. She will get an MRI today for one last check. She has no restrictions on her diet and she has taken great advantage of that to get a chef salad and plenty of juices. She walked around with PT this morning using a walker. The neurosurgeon saw her from the nurses station and just shouted out “that’s so amazing”. It was priceless. Last night was the best ever - she slept through except for a potty break when they gave her meds at 4:00. She got a small bath and her hair washed yesterday so it really picked up her spirits. She also had her teeth brushed for the first time in 9 days. She will most likely be transferred to inpatient rehab tomorrow. She can get her eyelids barely open. Her eyes are still not tracking together but surgeon said they would restore to normal in time. This was a result of almost losing her on the table. We are moving forward. Everyone who have been involved in her care are so excited for her. We are so thankful for these professionals who have cared for our Hope. Hope is in inpatient rehab and will also be expected to have physical therapy as well. Caleb and Hope are far from home. These donations are making it possible for Caleb to continue to be at the hospital with Hope supporting and caring for her. Your donations are going towards rehab, medical expenses, food, gas, all things child related for Leah and Miles. And when it's time for physical therapy they will go towards that too. Please consider giving a donation of any size(none is too small/everything helps) to this precious family! Your donations are literally life changing for Caleb and Hope! We thank you from the bottom of our hearts!! Update 1/18/2018:
Hope is discharged to go to inpatient rehab at West Florida Hospital. They have a great reputation for getting folks back on their feet. Hope’s eyes are still not fully open and her left arm / hand are weak. Yesterday’s MRI showed no new strokes and was generally stable from the last scan. She had another great night of sleeping and took many naps throughout the day. So we look forward to our next step in this journey and will continue to keep everyone updated. Praise God from whom all blessings flow! ❤️ Thank you Jesus and all of you who went before our Lord on Hope's behalf ❤️
Again, thank you for your prayers. Praise God for His mercy, love and compassion towards us!!! ❤️❤️❤️Please continue to pray for Hope, Caleb and their family ❤️ THANK YOU ALL for your prayers and donations..they mean more than you know!! ❤️
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Organizer
Brittany Morrison
Organizer
Freeport, FL