Fight for Lily Hoehn (CRMO Warrior)

Hi, my name is Mindy Watkins, Grandmother of 9 year old Lily, who has an extremely painful RARE bone disease called CRMO (Chronic Recurrent Multifocal Osteomyelitis) which affects skin, GI, joints, inflammatory bowel disease and opens them up to co-morbid auto-inflammatory and auto-immune diseases. She has been fighting this since she was 4 years old. She not only suffers with constant bone pain but also bone fractures, a blood clot in her heart, tremors, fatigue, shakiness, muscle pain & weakness, hindered daily functioning resulting in having to use a wheelchair often, horrible headaches, abdominal pain, coughing, has Factor V a blood clotting disorder, mild hydronephrodis and a cyst on her Pituitary gland.

Because her disease is so rare she sees the top Specialist in the U.S.. We are trying to raise funds to pay for the flight, hotel, meals, transportation, extra medical fees, and expenses for having to take off. Her appointment is in March. Any help would be GREATLY APPRECIATED! God Bless and Thank you!